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| Craniosynostosis Chat This is the place for general questions, discussions, and updates about craniosynostosis. |
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03-30-2006, 07:45 AM
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#1 |
Join Date: Aug 2005
Location: Ontario, Canada
Age: 33
Posts: 2,270
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We're back!!!
Everything went great!!! Kalem's PS looked him over and said we don't have to see him again for another year...YAY!!! He had an evaluation done for his development and she said he's right on track. No delays!!! Music to my ears. The neurosurgeone told us that the mass on his back is actually his tailbone. His sticks out in comparison to other people. He has a very prominent tail bone, not very common but not unusual either. He wants to see him again in six months just to make sure it's not getting worse. The worse case scenario would be that they have to shave it down. All in all, our appointments went very well and I'm very happy with the end results.
We met Tracey and her BEAUTIFUL family. It was so great to meet them. We see so many pictures but it's very nice to meet other cranio moms live. Holly is such a doll. Kalem was kissing and hugging her, it was so cute. I promise to post pics later.
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Sylvie (mom to Loic and Kalem(Metopic) surgery was Dec 19, 2005 at Sick Kids, Toronto, ON
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03-30-2006, 08:19 AM
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#2 |
Join Date: Feb 2006
Location: nj
Posts: 460
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 Can't wait to see pics, although I must admit I am a bit jealous!!! And I am soooo happy all went well for Kalem, great news!!!
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03-30-2006, 08:43 AM
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#3 |
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Administrator
Join Date: Aug 2004
Location: Metro Detroit
Age: 35
Posts: 5,170
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 WOnderful news! Like Aimee, I'm jealous of you all getting to meet! I can't wait to se epictures though!
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03-30-2006, 10:18 AM
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#4 |
Join Date: Mar 2005
Location: Ontario, Canada
Posts: 1,416
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I can't wait either!! I'm at my MIL and I forgot my cord for my camera, so I can't download the pics. :(
Holly's eye appointment went well, no changes. She's far sighted inone eye, near int he other, which makes one work more and the other lazy. He told me to leave the patching for now, we'll try again later, rather than upsetting her with patching or drops. Also have to go back in 6 months too. We couldn't find Dr. Chung, I think he must've been out, but we're scheduling Holly for the June outreach clinic in our area and having her checked again as her soft spot is still not closing and it's been almost 6 months since her surgery. Kalem looked just awesome!!  what a frickin cute kid!! :) BTW Sylvie has a beautiful family, so nice to meet them!! :)
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03-30-2006, 10:53 AM
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#5 |
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Join Date: Aug 2005
Location: Ontario, Canada
Age: 33
Posts: 2,270
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o.k. here they are
    
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Sylvie (mom to Loic and Kalem(Metopic) surgery was Dec 19, 2005 at Sick Kids, Toronto, ON
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03-30-2006, 11:18 AM
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#6 |
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Emily and her Awesome NS!
Join Date: Aug 2004
Location: Oregon- Portland Metro Area
Age: 34
Posts: 302,223
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Glad both appointments went well. That's very cool that you got to meet. It's nice to do! Love the pictures- you all look great!!!
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Jennifer Mom to- Sarah(10), Reese(7), Emily (6) & Cody (6 mnths) Emily had Rt. Coronal Cranio corrected in '04 w/ Dr. Wehby in Portland, OR |
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03-30-2006, 11:30 AM
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#7 |
Join Date: Aug 2005
Location: Chicago Suburbs
Posts: 1,284
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Hooray! Glad your appointments went so well! Love the pictures. Tracey you are so cute in your matching black and white with Holly! Sylvie I do love your haircut! So stylin'! My Sylvie is a little jealous over Holly's date though! LOL! Kalem is quite a cutie!
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Lisa - Mother to 3 men and a little lady Anthony 10-08-1997, Frank 06-29-2000, Casimir 1-31-2003, & Sylvia 09-14-2004 (Left coronal & metopic craniosynostosis CVR/FOA 09-07-2005) |
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03-30-2006, 12:41 PM
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#8 |
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Moderator
Join Date: Aug 2005
Location: NW Ohio
Age: 27
Posts: 757
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I am jealous too!! The pictures are great!! They are both too cute!!!! It looks like you all had a lot of fun! Glad to hear all of the appointments went well!
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Denise mommy to David (2/25/03), Vance (12/22/04)-cleft lip,repaired 3/22/05, metopic cranio, CVR & FOA 8/23/05, & cleft palate, repaired 11/16/05, and Savannah (7/16/07) |
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03-30-2006, 12:52 PM
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#9 |
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Join Date: Mar 2005
Location: Ontario, Canada
Posts: 1,416
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YAY!!!!!! I love those pics!! Especially the one of the four of us!! Kalem is so cute, what a smile! :) I can't believe how BIG I look int heat one though!! UGHHHHHHHH!!
We had a great visit, it will be nice to meet maybe over the summer and take the kids to a park or something and let them play. A more relaxed atmosphere!
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03-30-2006, 06:33 PM
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#10 |
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Join Date: Feb 2006
Location: nj
Posts: 460
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Looks like they took a liking to eachother!!! You all look great!!! Hope you had fun.... even w/out the rest of us!!!
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