+ Reply to Thread
Page 1 of 2 1 2 LastLast
Results 1 to 10 of 11

Thread: doctor and hospitals??

  1. #1
    mom2mykidos3 is just starting out mom2mykidos3's Avatar
    Join Date
    Jun 2006
    Location
    Syracuse, Utah
    Posts
    730
    Rep Power
    20

    Default doctor and hospitals??

    Since I am trying to work with the doctors, both craniofacial surgeons and neurosurgeons, I would love a list of doctors and hospital you all went too. I have started a list, but it is taking forever to look up the doctors.

    If I have a name and the hospital it will be a lot easier. I would love to be able to email all the doctors to be able to get in contact with them to let them know I am trying to set up some support for families that don't know there is support out there.

    Please, I need your help.

    If you want to email me that is fine too. My email is mom2mykidos3@msn.com, or you can call me at 801.779.4173. Thanks
    Heather mommy to Miriam (03.24.2006) FOA and CVR on October 6, 2006 Left Eye strabismus surgery, Dec. 20, 2006. Right eye strabismus surgery, July 27, 2007. Both eye strabismus surgery March 29, 2008. Touch Up sugery done at Primary Children's in SLC, Utah 01/04/2011.

  2. #2
    Administrator Katie is a splendid one to behold Katie is a splendid one to behold Katie is a splendid one to behold Katie is a splendid one to behold Katie is a splendid one to behold Katie is a splendid one to behold
    Join Date
    Aug 2004
    Location
    Detroit, Michigan, United States
    Age
    38
    Posts
    5,001
    Rep Power
    10
    Momma to Dillon 6/25/04 (metopic and bicoronal) and Aaron 2/24/08, and wife to Doug.
    CVR/FOA 11.16.04 @ 4.5 months old
    Second surgery 1.5.10 @ 5.5 years old (all went excellent!)
    Dr. Ian Jackson and Dr. Karol Zakalik Providence Hospitals, MI

  3. #3
    Mike, Austin, & Dillon's Mommy MikenAustinsMommy is just starting out MikenAustinsMommy's Avatar
    Join Date
    Apr 2006
    Location
    S. California
    Age
    35
    Posts
    262
    Rep Power
    19

    Default

    Austin's Doctors were Dr. Loudon (NS) and Dr. Sundine (PS) at Children's Hospital Orange County (CHOC) in Orange, CA.
    -Heather

    Mom to Michael - 10/30/94 - No Cranio
    Austin - 7/7/05 - Right Coronal Craniosynostosis (Surgery at CHOC on 11/18/05)
    Dillon - 7/11/07 - Perfect little round noggin

  4. #4
    mom2mykidos3 is just starting out mom2mykidos3's Avatar
    Join Date
    Jun 2006
    Location
    Syracuse, Utah
    Posts
    730
    Rep Power
    20

    Default

    Thanks Katie for the list. I did have that one. I emailed all the doctors that had emails on it, but some came back as errors. I would still love the informations from the parents. I know there are doctors that aren't on the list. My doctor or hospital aren't on there.
    Thanks again.
    Heather mommy to Miriam (03.24.2006) FOA and CVR on October 6, 2006 Left Eye strabismus surgery, Dec. 20, 2006. Right eye strabismus surgery, July 27, 2007. Both eye strabismus surgery March 29, 2008. Touch Up sugery done at Primary Children's in SLC, Utah 01/04/2011.

  5. #5
    cheryl2 is on a distinguished road cheryl2's Avatar
    Join Date
    Apr 2006
    Location
    Fairfield County, CT
    Posts
    4,929
    Rep Power
    42

    Default

    Clara had her CVR at Stanford. Her docs were Dr. Schendel (PS) and Dr. Shuer (NS) She had her cranioplasty at Yale/New-Haven. Her doc there was Dr. Persing. I don't know the NS who works with him since she did not need one for the cranioplasty. Good luck.
    Cheryl (mom to Clara, born 11/5/02)
    profound unilateral hearing loss
    Saethre-Chotzen syndrome
    Right coronal cranio-CVR/FOA 9/15/03; cranioplasty 4/5/05
    ear tubes-6/30/04, 5/9/06
    ptosis surgery-7/1/05, 8/13/10
    strabismus surgery-10/11/05, 5/9/06

  6. #6
    Administrator Jennifer has a spectacular aura about Jennifer has a spectacular aura about Jennifer has a spectacular aura about Jennifer's Avatar
    Join Date
    Aug 2004
    Location
    Oregon- Portland Metro Area
    Age
    37
    Posts
    302,906
    Rep Power
    10

    Default

    I'll get you all the info I have on mine soon!
    Jennifer
    Mom to- Sarah(13), Reese(10), Emily (8.5) & Cody (3)
    Emily diagnosed w/ Rt. Coronal Cranio corrected in '04 w/ Dr. Wehby in Portland, OR

  7. #7
    Jules is just starting out Jules's Avatar
    Join Date
    Oct 2006
    Location
    Denver, Colorado
    Posts
    132
    Rep Power
    17

    Default

    Gabe's NS is Dr. Michael Handler at The Children's Hospital in Denver. I have attached a web link but couldn't find an e-mail.

    I am not sure if there are other doctors doing CS procedures in Denver. We were not given any choices. The neonatal doc at PSL said he was the best.
    Jules, mommy to Gabe, 2 years old,
    sagittal synostosis, 2 years post-surgery 12/23/04

  8. #8
    Jules is just starting out Jules's Avatar
    Join Date
    Oct 2006
    Location
    Denver, Colorado
    Posts
    132
    Rep Power
    17

    Default

    Ok, I am slow tonight. Let's try this again...here is the link.

    http://www.thechildrenshospital.org/...m?RecordID=165
    Jules, mommy to Gabe, 2 years old,
    sagittal synostosis, 2 years post-surgery 12/23/04

  9. #9
    Melissa is just starting out Melissa's Avatar
    Join Date
    Oct 2006
    Location
    NC, USA
    Age
    39
    Posts
    97
    Rep Power
    17

    Default

    Bryson's craniofacial surgeon is Dr. Louis C. Argenta at Wake Forest University Baptist Medical Center in Winston-Salem, NC. His neurosurgeon is Dr. Steven Glazier, also at WFUBMC.
    Melissa, mom of Bryson (w/Pfeiffer Syndrome), age 14, and Zack, age 11.

    Bryson's page: http://BrysonsStory.tripod.com

  10. #10
    mom2mykidos3 is just starting out mom2mykidos3's Avatar
    Join Date
    Jun 2006
    Location
    Syracuse, Utah
    Posts
    730
    Rep Power
    20

    Default

    Thank you so much ladies, keep up the good posts. I have heard back from some of the doctors. I was excited to see that the doctors want to work with me.
    I will keep you posted at how it goes.
    Heather mommy to Miriam (03.24.2006) FOA and CVR on October 6, 2006 Left Eye strabismus surgery, Dec. 20, 2006. Right eye strabismus surgery, July 27, 2007. Both eye strabismus surgery March 29, 2008. Touch Up sugery done at Primary Children's in SLC, Utah 01/04/2011.

+ Reply to Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts