Hi im new..!

[SophieA]

Hi im new to this website, im Nicola aged 32, have a partner Nick 34, and two kids Kieran (5) and Sophie who is 17 months and has metopic, shes been referred to GOSH in London to see the Cranio team, her first appt with them is in 4 weeks time. She was given an x-ray when she was about 8 months and they said there was nothing wrong with her?!!! but when I moved to Inverness the Paed didnt even x-ray her and said she had metopic, and referred her to Edinburgh. But Edinburgh said they no longer dealt with this sort of thing and referred us to London! a long way to go when we live north of Inverness!! I will try and find some photos which best show Sophie's head shape and post them soon.

is there anyone else from scotland, Im in touch with Eleanor's mummy through another website, headlines. anyone else been at GOSH in London?

ive no idea why we werent referred to Glasgow?!!

thanks.

Nicola

[*jules*]

Hi Nicola, I'm sorry I have no answers to your questions. I just wanted to welcome you to CK and express how sorry I am that you are going through this. Its a long hard road, but one that has been traveled sucessfully many, many times before. My son is also metopic and surgery is scheduled next month. This site-well, really the ladies on this site-have been such a strong support for me and I know they will do the same for you. Best of luck and best wishes.

[tracy_girl05]

I hope you soon find the answers you are lookinf for- I just wantedto add my welcome to CK!

[SophieA]

hi thanks to all, im having trouble uploading photos at the moment, hope to get them on soon so you can see Sophie ! x

[mamaelizabeth]

Hi Nicola, I dont know why you have not been referred to Glasgow either, London seems like a long way!.
My 2 year old girl, Elizabeth has been recently diagnose dwith saggital synostosis in GOSH. She is waiting for surgery in a couple of months time.
I hope you get your appointment quickly, waiting is the hardest part.
Emma

[dannlark]

Welcome to CK!!! So glad you found us. There are many people here from your neck of the woods and I'm sure you'll get a lot of help and recommendations from them all. Can't wait to see some pictures of you little one. We LOVE pictures here... Hang in there, Mommy! The cranio coaster is a crazy ride, but you won't ride it alone here.

[*Jessica*]

Larkin said what I was going to say! Just want to say welcome to the new fellow metopic mommy!!!

[Zara's mum]

Hi Nicola! Welcome to craniokids!! Sorry you are joining us on this crazy rollercoaster but, i'm glad to meet you!! We are currently staying in an apartment opposite GOSH because Zara is having her surgery next wednesday! We met with the neurosurgeon today, what an absolute gentleman, we are so pleased with him!! tomorrow we are seeing the craniofacial surgeon and hving some eye tests, and I know he is lovely because we met him in feb!! The hospital is just wonderful, and I am so pleased that we are having her surgery here.... we ahve traveled from Ireland!!! looking forward ot getting to know you, Chloe xx xx

[Eleanor's Mummy]

Hi Nicola
Welcome to CK - as others have said, it is fabulous here and the support is amazing. I'll pm you back and give you the info I have about the Southern. I'm really surprised though that you have been sent from Inverness to GOSH - there are of course the 3 other supra hospitals which are closer, and the Scottish version in the Southern General. The great thing for you though, is that you can hear about our great experinence there, whilst going through it with Chloe (above) in GOSH - best of both worlds.

Will pm you just now though
Talk soon

[charliesmummy]

Hi Nicola welcome to Cranio Kids. Im really sorry to hear your going through this cranio journey but im glad you've found us. GOSH is a long way from where you are, cant understand why you have been referred there when there are hospitals a lot closer to home. My son Charlie had surgery for Metopic when he was 14 months old & he just blew me away at how well he coped with it all. It's deffinately much harder on us parents.
How did you get referred to GOSH?
Maybe it's not to late to get transferred to another hospital that's more local to you. Im sure Hazel has told you how fantastic Southern General are & you only have to look at pictures of her beautiful daughter to see what an amazing job they did.
Wherever you do end up going to though, we will all be here for you every step of the way x