Simon's Cranio Clinic Today
Simon saw his craniofacial surgeon and met the new neurosurgeon in the practice. They were happy with how Simon is looking, and they attempted to take pics. I asked about the 2 soft spots, and they (both surgeons) were not too concerned right now. They said the locations (by the temples) and the sizes were not too much to worry about, and they felt that there is a possibility that more bone could grown in. Even though the spots should have been filled after a year (this past June 29), they want to wait. They commented that in a year or so his skull should be the full adult size and the bone should be done growing. Then we can better assess the situation with a CT scan. We will go back in 6 months and talk about it again. If the spots do not fill in and we opt to do something, it would be done right before Simon goes to kindergarten as a cosmetic procedure. They do not think that we need to worry about Simon wearing a helmet or limiting activities at this point. Surprisingly, I am not relieved by this. I can feel his pulse in those soft spots, and I hate waiting to see what will happen. What is small to the surgeons is huge to me. I guess I am just being a Mommy, but I have that added experience of wearing the helmet in P.E. and sitting out during softball because of my soft spot. Rather than take their lack of concern as a reason to be comforted, I am feeling more annoyed at the reference to a fix being cosmetic. :s:: Sorry, I guess I am just a little more on edge due to lack of sleep. Simon's ear infection seemed to be getting better, then his fever started spiking again yesterday. The poor guy is miserable, and I am exhausted.
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's to you. Hopefully he'll be feeling better soon and you can get some rest!
