Question all

[greenprincess]

Hi all

question for you all did any of your kids have problems with their eye lids? my son lids make him look sleepy all the time. ped thought surgery would fix it. said it looks like the forhead is pushing why out and pushing eye lids down. just wanted to know what you thought about. well i will keep in touch.
amy

[Abby'sMom]

My daughter Abby was bicoronal so her case is a little different than yours but both her eyelids were swollen and it was difficult for her to open them for nearly a week after she was born. When the swelling went down her left eyelid did remain somewhat droopy until after surgery. She doesn't have any problems with her eyelids now but interestingly both my husband and his mother have droopy left eyelids. (FYI - I never noticed my husband had a droopy eyelid until the geneticist pointed it out)

I hope this helps. (((hug)))

[mattricia]

That theory makes sense to me, Amy. Much of their pre-surgery facial features are not as they would be without the premature fusing...

I would answer yes to that question. He just looks sooo different now. Sometimes i try to compare pre/post pics, by covering up the top of his head (and even his eyes), and the bottom half of his face doesn't even look the same to me.

[Amy K]

Camden had a "deer caught in headlights" look to his eyes before surgery. His eyes seemed to be stretched open, if that makes sense.

[greenprincess]

did any of yall peds say anything about their eyes

[matt-n-jack's mom]

Hey Amy,
My son Jackman is also Saggital. His ped never said anything about his eyelids but we did notice a big difference in the appearence of his eyes after he had his surgery. His eyes were closer set and smaller looking before his surgery. Good luck with your little man! Jessica

[cheryl2]

Hi, Clara and I both had ptosis, which literally means droopy eyelids. It was corrected surgically in a separate operation than the cranio. If the droopiness does is not severe enough to affect vision, the doctors usually don't recommend surgery for it. In our case, it was affecting our vision, so we had surgery. If his lids still look droopy after the surgery, I'd check with a pediatric ophthalmologist.