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Thread: Off to NYC

  1. 11-10-2008 11:42 AM #1
    momoftwo
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    Default Off to NYC

    So we are getting ready for tomorrow. We have to leave out at like 3:00am to drive to fly to NYC. LONG day ahead of us. We probably won't be home until 10:00pm or after and MIL is in town to watch Reagan...so I will update you guys as soon as I can.
    Logan had her appointment with Baby Net this morning. We should know something about that on Wednesday.
    Got a call from Dr. Abbott's office this morning saying that he might not be able to meet with us tomorrow..but that if that happens it will be his nurse practioner and Dr. S. At this point that HAS to be okay. You know.. Hopefully he will make it! I pray that he does.
    So we are off LATE tonight .. or EARLY tomorrow morning! Our appointment is at 11:30 am. Oh I hope the day goes smoothly!
    Thanks for all the support ladies!!!!
    Amy
    Proud mom to two girls
    Reagan- 03/27/04..no issues
    Logan- 08/01/07..mild metopic cranio-had signs of ICP

    Read Logan's story at http://www.craniokids.org/support/sh...ad.php?t=10285
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  2. 11-10-2008 11:44 AM #2
    Janet
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    Best of luck tomorrow!!!! I'll be thinking about you guys all day, I hope everything goes smooth for you and Logan.
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

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  3. 11-10-2008 11:54 AM #3
    Shar
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    Hope your trip is safe and thorough and the Dr is able to make the appt. We'll be praying for you guys.
    Shar
    Mom to H (11/2007 ~ born with a Metopic Ridge, no surgery needed)
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  4. 11-10-2008 12:11 PM #4
    melsch
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    Good luck Amy! I am praying for easy travels and a great appointment! HUGS!
    Melissa
    Mom to 2 beautiful angels!

    Kayla (8/99)
    Logan (7/07)
    Metopic sugery Nov. 7, 07'

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  5. 11-10-2008 12:19 PM #5
    dannlark
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    Amy, good luck tomorrow!!!! I hope you finally get some good answers to all your questions and that Logan has a nice, QUIET trip. Can't wait to hear your update!!!!
    Larkin
    Mom to 3 boys: Aidan 9/8/2000 Camden 7/29/2003 Ian 7/29/2007 - Upper end "Mild" metopic. Surgery 8/27/08, Dr. Fearon, Medical City Dallas. We're on the other side!!!
    http://www.caringbridge.org/visit/ianrodriguez

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  6. 11-10-2008 02:50 PM #6
    mckennasmum
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    best of luck, hope you get all the answers you desperately need! can't wait to hear about it!
    Susan

    Married to Colin
    Kara 23/02/05
    McKenna 19/09/07 Mild Metopic Fusion, Under care of Craniofacial team
    Sierra 11/01/10
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  7. 11-10-2008 03:12 PM #7
    Mindy
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    Best of luck Amy!! I will pray that your travels are safe and that your day goes smoothly! I hope you finally get all the answers you are looking for. Are you flying to and from NY in the same day?

    Can't wait to hear your update after you get home!

    Take care!!!
    Mom to Riana 9/19/05, Shane 7/5/07 (mild metopic cranio- no surgery required), Addison 6/16/12
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  8. 11-10-2008 03:15 PM #8
    Tawnia
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    Good luck!!!
    Azia-lynn's Story: http://www.craniokids.org/support/showthread.php?t=2458
    Surgery Pics: http://craniokids.org/support/showthread.php?t=2019

    CVR/FOA Oct 9th, 2007
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  9. 11-10-2008 03:38 PM #9
    momoftwo
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    I emailed Dr. S about Dr. Abbott potentially not being available for our appointment and how is that going to work, we wanted him to read the MRI, etc.. Dr. S emailed me back within the hour and said "we will be able to get everything done one way or another."

    I spoke with Dr. Abbott's nurse and she said that he might be in emergency surgery in the morning. She said that she would be there and that she already spoke with Dr. S and that everything will be fine...that if we have any questions when we leave, she will have Dr. Abbott call us- if he can't make it. And she added that she has been his nurse for 20 plus years.

    Mindy, yes we are flying up for the appointment and then flying back the same day.

    Thanks for the prayers and well wishes!!!
    Amy
    Proud mom to two girls
    Reagan- 03/27/04..no issues
    Logan- 08/01/07..mild metopic cranio-had signs of ICP

    Read Logan's story at http://www.craniokids.org/support/sh...ad.php?t=10285
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  10. 11-10-2008 04:17 PM #10
    kking
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    Sending big hugs for your trip! Safe travels! Look forward to hearing what you find out.
    Kaci
    mom to Madi (age 11, CVR/FOA at age 5) and to Austin (age 9, CVR/FOA at 22 mos and age 3). Both also have a condition called chiari malformation type I which is a secondary diagnosis caused by their cranio.
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