Time at hospital
I was just wondering my PS said that Miriam would only be in the hospital for 3 days. Is that being really optimistic? I was thinking more like 4 or 5. I was just wondering how long all of you were in. I need to know for the rest of my family that is taking on the babysitting for me. thanks
Heather mommy to Miriam (03.24.2006) FOA and CVR on October 6, 2006 Left Eye strabismus surgery, Dec. 20, 2006. Right eye strabismus surgery, July 27, 2007. Both eye strabismus surgery March 29, 2008. Touch Up sugery done at Primary Children's in SLC, Utah 01/04/2011.
Clara was in the hospital 5 days. She had the traditional FOA/CVR.
Cheryl (mom to Clara, born 11/5/02)
profound unilateral hearing loss
Saethre-Chotzen syndrome
Right coronal cranio-CVR/FOA 9/15/03; cranioplasty 4/5/05
ear tubes-6/30/04, 5/9/06
ptosis surgery-7/1/05, 8/13/10
strabismus surgery-10/11/05, 5/9/06
Oh sorry I guess I should say that Miriam will have CVR and the FOA.
Heather mommy to Miriam (03.24.2006) FOA and CVR on October 6, 2006 Left Eye strabismus surgery, Dec. 20, 2006. Right eye strabismus surgery, July 27, 2007. Both eye strabismus surgery March 29, 2008. Touch Up sugery done at Primary Children's in SLC, Utah 01/04/2011.
Kalem had the CVR and FOA and his surgery was December 19 and we were discharged x-mas eve afternoon. So he was there for 6 days.
Sylvie (mom to Loic and Kalem(Metopic) surgery was Dec 19, 2005 at Sick Kids, Toronto, ON
We had ours Oct 5th and were discharged Oct 11th to come home, so 6 days as well. I know some hospitals send them home though as soon as they can peek out of one eye! Holly had the traditional surgery as well.
We were told to expect to be in the hospital for about 5 days. Well, Simon's surgery was on June 29. On July 1, they wanted to discharge us and have us stay that night in the Ronald McDonald House next door. Simon's eyes were not even cracked open yet! He started running a low fever, and we stayed until the evening of July 2. As we were packing up, his eyes cracked open.
One thing that we were not really prepared for was the change in his sleep habits. It was like having a newborn all over again! You might want to see if you can enlist some babysitting help over the following weeks just so that you can get some rest. (It seems to take a month or two for the little ones to get back on track.)
Cindy
*Skull bone removal surgery in summer of '77 for right unicoronal*
Mommy to Simon
*CVR w/ FOA surgery on June 29, 2005 for bicoronal*
*CVR with bone graft and bone paste surgery on July 15, 2009 for bicoronal and defects*
*Bone grafts and titanium plates on June 27, 2012 for defects*
Soul Mate to Chris
See our cranio journey at
www.thescofieldfamily.com/craniosynostosis.html AND http://craniomommynbaby.blogspot.com
Gee how could I forget that Cindy!?! LOL!! Newborn Doodles was easier than Post Op Doodles!! She was away from 10:30 pm - 4- 4:30am every night for a couple of weeks! If I tried to put her to bed or shut off a light she freaked out!! She's never slept with lights on so if kinda freaked me out too. Thankfully we got through that, it took a good month or more to have her back sleeping half *ss normal again. She doesn't sleep with the lights on anymore. We've discussed this before nd I think the consensis (sp?) was that most of them are possibly afraid of the dark cause their eyes were swollen shut for a few days and they couldn't see anything then at all. Who knows what goes on in their little heads eh?
We were told to expect 4-5 days. Day 3 they said we could go home in the morning (of day 4). I thought they were crazy, though by day 4 we were all ready to go home. If it is 3 days great! I would plan on 5 though.....just cuz they all handle things a little different, each seems to swell differently, handle medication differently, etc....
As for sleeping- Emily was horrible before, so after wasn't that hard or new to me.....though she never slept w/ more than a little nightlight before and after was horrified to be in the dark....she slept w/ a lamp on for a few weeks!
Jennifer
Mom to- Sarah(13), Reese(10), Emily (8.5) & Cody (3)
Emily diagnosed w/ Rt. Coronal Cranio corrected in '04 w/ Dr. Wehby in Portland, OR
I figured about the sleeping habits. Miriam does sleep through the night now, so I enjoying it while I can. Thank goodness that my husband will be home for a total of 12 days, including the time in the hospital. Thanks for the response.
Heather mommy to Miriam (03.24.2006) FOA and CVR on October 6, 2006 Left Eye strabismus surgery, Dec. 20, 2006. Right eye strabismus surgery, July 27, 2007. Both eye strabismus surgery March 29, 2008. Touch Up sugery done at Primary Children's in SLC, Utah 01/04/2011.
When I first went to the PS they told us 5 to 7 days now when we were just there this last visit they told me 3 to 5.We go in on a Friday they have us leaving on mon.
Megan
Mommy to 2 handsome little boys Hunter(2 no cranio)Tyler (Born April 20,2006)has Sagittal craino surgery Jan 5,2007
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