+ Reply to Thread
Page 1 of 2 1 2 LastLast
Results 1 to 10 of 12

Thread: PostOp-is this normal?

  1. #1
    Safely on the other side Mother of boys is just starting out Mother of boys's Avatar
    Join Date
    Aug 2008
    Location
    Kansas
    Posts
    823
    Rep Power
    16

    Default PostOp-is this normal?

    I had read previously about the sleeping problems after surgery. For those who experienced that, was it just night sleeping or was their whole sleeping rhythm thrown off? Keeson hasn't been sleeping right day or night. He only sleeps for brief periods of time. He has to be exhausted because I know he isn't getting enough sleep (when you add up all the little "naps" in a 24 hour period). Also, did anyone experience eating problems? From when we were placed in a regular room Saturday evening until Dr. Fearon came in on Sunday morning, Keeson had eated about 26 ounces. That was pretty close to what he was eating before the surgery, but since then, he hasn't eaten half of that in a day. Most of the time I can only get him to eat maybe 2 ounces at a time whereas before the surgery he would eat about 6 ounces at each feeding. He also used to suck his thumb before the surgery, but hasn't done it since. I am thinking it is due to the fact that he hasn't really moved his head from side to side yet, and when he sucked his thumb before, he usually turned his head to the side.

    Any advice would be appreciated. Thanks.


    Kepler 6/12/06-no cranio
    Keeson 5/13/08-saggital, 10/3/08-CVR surgery-Dr. Fearon and Dr. Price


    http://www.caringbridge.org/visit/keesonentz

    Keeson's surgery and recovery photos
    http://www.craniokids.org/support/sh...9825#post79825

  2. #2
    beccad will become famous soon enough beccad's Avatar
    Join Date
    Jan 2008
    Location
    Atoka, Tennessee, United States
    Age
    36
    Posts
    1,987
    Rep Power
    22

    Default

    We definitely had trouble with the sleeping but not with the eating. Her sleep patterns were off both night and day and it took her almost a month to get back to sleeping really good. She was/is a great sleeper, 2-3 hour naps and sleeps all night, so I was so happy when she started sleeping again. Good luck with the recovery I'll be praying for you this is a very exhausting time.
    Becca:
    Mom to three wonderful kiddos:
    Noah is 8
    Elijah is 6
    Julianna is 3(Left Coronal Cranio)
    Vanderbilt Children's Hospital Nashville, TN
    Surgery April 15, 2008 (canceled because of a cold and fever)
    Surgery rescheduled June 26, 2008
    2nd surgery April 14, 2011
    WE ARE ON THE OTHER SIDE

    www.caringbridge.org/visit/juliannaharber
    www.harberclan.blogspot.com


  3. #3
    Cranio Mentor and Azia's Mommy Tawnia has a spectacular aura about Tawnia has a spectacular aura about Tawnia's Avatar
    Join Date
    Oct 2007
    Location
    Lower Mainland, BC, Canada
    Age
    29
    Posts
    6,805
    Rep Power
    49

    Default

    Azia took a good 2-3 weeks to be eating as much as before surgery. I don't know why. I just didn't push it and did it gradually. And yes the sleeping thing wasn't just nights with us, it was all the time. Is he still on any meds? They could be making him nauseous?

  4. #4
    Safely on the other side Mother of boys is just starting out Mother of boys's Avatar
    Join Date
    Aug 2008
    Location
    Kansas
    Posts
    823
    Rep Power
    16

    Default

    We are still giving him Tylenol for pain and occasionally Motrin.


    Kepler 6/12/06-no cranio
    Keeson 5/13/08-saggital, 10/3/08-CVR surgery-Dr. Fearon and Dr. Price


    http://www.caringbridge.org/visit/keesonentz

    Keeson's surgery and recovery photos
    http://www.craniokids.org/support/sh...9825#post79825

  5. #5
    We're on the other side!! dannlark is just starting out dannlark's Avatar
    Join Date
    May 2008
    Location
    Los Angeles, CA
    Age
    45
    Posts
    6,966
    Rep Power
    47

    Default

    We were lucky because Ian got right back on schedule very quickly. We tried to keep it as "normal" as possible while in the hospital and as soon as he was sprung. That helped a lot. As far as eating, is he pooing regularly yet? Ian was suffering so badly from gas after the surgery. They give the kids drugs that paralizes their digestive track during surgery and it takes a while for them to get back to "regular". Dr. Fearon joked that all Ian needed was a good Mexican dinner... It was a good 2-3 weeks before he wasn't suffering from the gas. But he's always had a problem with gas and pain so I think it took him longer to adjust. That could be a problem with Keeson. Try a lot of little meals through out the day until his poor tummy has had a chance to bounce back. It's a BIG surgery, so these adjustments are to be expected. Have you tried to cosleep with Keeson for a few nights? That also helped Ian get back to his old self. I know it's hard with two little ones at home, but it might be worth a try for a couple of nights... ((HUGS)) Hang in there Mommy, this too shall pass. The hardest part is behind you!!
    Larkin
    Mom to 3 boys: Aidan 9/8/2000 Camden 7/29/2003 Ian 7/29/2007 - Upper end "Mild" metopic. Surgery 8/27/08, Dr. Fearon, Medical City Dallas. We're on the other side!!!
    http://www.caringbridge.org/visit/ianrodriguez


  6. #6
    So thankful mimi is just starting out mimi's Avatar
    Join Date
    Jun 2008
    Location
    Grand Rapids, Michigan
    Age
    42
    Posts
    480
    Rep Power
    15

    Default

    Brandt was eating well in the hospital and then started puking once we were home (reaction to all the meds and going off of them). It took a good 36-48 hours to get that under control. After that (around day 6 post-op) he started eating again like crazy and is now back to his ravenous self!

    Brandt didn't sleep more than 2 hours at a time before surgery, so the sleeping thing is nothing new for us. He did have trouble with pain when we lie him on his back, so up to now I've been holding him on me all night to sleep. I may try the crib tonight before he gets too used to this!

    Good luck to you!
    Mimi
    Benjamin Hayes 9/18/03*, Leyna Louise 3/1/05, Brandt Colvin 4/15/08
    Sagittal surgery 9/30/08 Helen DeVos Children's Hospital
    Dr. Mann (CFS) and Dr. Foody (NS)
    Brandt's Surgery Photos

  7. #7
    is happy happy happy! Wyatt's Mom has a spectacular aura about Wyatt's Mom has a spectacular aura about Wyatt's Mom's Avatar
    Join Date
    Nov 2007
    Location
    Canada
    Age
    30
    Posts
    4,377
    Rep Power
    36

    Default

    Yep, the sleeping thing is normal. Wyatt took awhile to get back to eating regularily too. I think all the meds make their tummy upset.

    About the thumb sucking, is he turning his head at all? He really should be by now. If he continues to not turn his head I would have him checked by someone. Maybe he is just nervous about it but I don't remember Wyatt having an issue with that. He didn't like lying on his back for diaper changes though.

    Good luck. I'll pray that he gets back on track soon.
    Sarah
    Proud mommy of:
    Logan - Jan '06 No Cranio
    Wyatt - April '07 Metopic & Sagittal - Surgery at BC Children's Hospital Feb 27th, 2008
    Cooper - Sept '09 currently have some concerns with his metopic suture, we've seen a neurosurgeon but are waiting and watching



    View Wyatt's Story: http://www.craniokids.org/support/showthread.php?t=2607

  8. #8
    Safely on the other side Mother of boys is just starting out Mother of boys's Avatar
    Join Date
    Aug 2008
    Location
    Kansas
    Posts
    823
    Rep Power
    16

    Default

    He is turning his head a little bit. He usually just follows things with his eyes without turning his head. He did try to roll over today which is something he had mastered before the surgery, but he would get on his side and just scream. Before the surgery, as soon as we layed him on his back he would try to flip over, but he isn't doing that yet.


    Kepler 6/12/06-no cranio
    Keeson 5/13/08-saggital, 10/3/08-CVR surgery-Dr. Fearon and Dr. Price


    http://www.caringbridge.org/visit/keesonentz

    Keeson's surgery and recovery photos
    http://www.craniokids.org/support/sh...9825#post79825

  9. #9
    Lisa is on a distinguished road
    Join Date
    Dec 2007
    Posts
    2,804
    Rep Power
    28

    Default

    I think all of this is normal. It took Bradley about 3 weeks before he started rolling over and being active again. The eating, I would follow the other suggestions and maybe try smaller amounts more often. The sleeping, I slept with Bradley in our spare bed for about 3-4 weeks post-op and that helped a lot. He would still wake a lot, but me being right there, consoled him fairly easy.
    I hope you find things that work for Keeson and your little cutie is back to normal soon.

  10. #10
    Fed is just starting out Fed's Avatar
    Join Date
    Nov 2008
    Location
    Brisbane, Australia
    Posts
    18
    Rep Power
    11

    Default

    Hey there,
    My son Oscar has the surgery a little over a month ago now and his sleeping went from great(slept through from 7.30-6) to waking through the night and being really hard to settle into sleep in the evenings...did your sleep issues resolve? If so any ideas? He also became very attached to his dummy...i now leave my shirt that i have worn all day in the cot with him and i think that helps but he still wakes up...or is it all to do with the fact he has gone into that post 6 month developmental stage?? Ahh so hard to know!

+ Reply to Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts