+ Reply to Thread
Page 1 of 4 1 2 3 ... LastLast
Results 1 to 10 of 34

Thread: well...we're off to Dallas. Wish me luck...NO MORE SURGERY!

  1. 10-02-2008 03:40 PM #1
    three.little.boys
    three.little.boys is offline
    three.little.boys has a spectacular aura about three.little.boys has a spectacular aura about three.little.boys's Avatar
    Join Date
    Dec 2007
    Location
    Raymore, MO
    Age
    36
    Posts
    2,959
    Rep Power
    29

    Default well...we're off to Dallas. Wish me luck...NO MORE SURGERY!

    Some of you know that I have some concerns about soem bone erosion on Q's forehead. So, we leave tomorrow at 6:30 for a 8:30 flight. I bought a carseat at a garage sale today for $5 so I can use it in Dallas and then ditch it! The rental car company charges $50 to rent a car seat...that is $10 more than I am paying to rent the car!!

    This trip is bittersweet for me. It always makes my tummy uneasy walking back through those hospital doors. So much pain and raw emotion happened within those walls. But...the chance to eat at the BBQ joint in the foor court makes up for that!

    I am scared to get bad news....but overjoyed to meet Pam and Keeson, Jen and Claire, Kerre and Jack, Samantha and Ashton (again!), and Leslie and Hayden. I promise to take some pics!!

    Ta Ta....I'll probably check back in once tonight before going to bed!
    [FONT=Arial Black]Sadie [/FONT
    Ethan 8-11-02
    Gabe 4-13-04
    Quintin 4-17-07 (metopic CVR/FOA 2/19/08)

    http://www.craniokids.org/support/showthread.php?t=2498

    Reply With Quote Reply With Quote
  2. 10-02-2008 03:44 PM #2
    momoftwo
    momoftwo is offline
    momoftwo is just starting out momoftwo's Avatar
    Join Date
    Feb 2008
    Location
    Coastal SC
    Age
    38
    Posts
    1,498
    Rep Power
    20

    Default

    Good luck Sadie!!! Praying for you and Q. Keep us posted!
    Amy
    Proud mom to two girls
    Reagan- 03/27/04..no issues
    Logan- 08/01/07..mild metopic cranio-had signs of ICP

    Read Logan's story at http://www.craniokids.org/support/sh...ad.php?t=10285
    Reply With Quote Reply With Quote
  3. 10-02-2008 03:52 PM #3
    Janet
    Janet is offline
    Registered User Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet's Avatar
    Join Date
    Mar 2007
    Location
    Mississauga, Ontario, Canada
    Age
    39
    Posts
    20,403
    Blog Entries
    3
    Rep Power
    123

    Default

    Best of luck Sadie!!!
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

    Reply With Quote Reply With Quote
  4. 10-02-2008 04:01 PM #4
    Lisa
    Lisa is offline
    Lisa is on a distinguished road
    Join Date
    Dec 2007
    Posts
    2,804
    Rep Power
    28

    Default

    Best wishes for no more surgery for Quintin and I am SO jealous that you get to meet so many cranio friends!!! Take LOTS of pics!!!
    Reply With Quote Reply With Quote
  5. 10-02-2008 04:10 PM #5
    mv3kids
    mv3kids is offline
    mv3kids is just starting out mv3kids's Avatar
    Join Date
    Apr 2008
    Location
    NL, Europe
    Age
    36
    Posts
    265
    Rep Power
    14

    Default

    Best of luck tomorrow! And have a great time with your cranio friends!
    E v e l i e nS t ij n (6) metopic cranio, CVR/FOA 28/11/2007, Erasmus MC Rotterdam http://www.youtube.com/watch?v=OzIy282kIdYhttp://www.youtube.com/watch?v=FH34-0JTmWE
    Reply With Quote Reply With Quote
  6. 10-02-2008 04:15 PM #6
    mattricia
    mattricia is offline
    At Peace mattricia is on a distinguished road mattricia's Avatar
    Join Date
    Dec 2007
    Location
    Michigan
    Age
    39
    Posts
    2,691
    Rep Power
    27

    Default

    I'll be thinking of you guys. Enjoy the kooks and the BBQ!

    -Tricia


    Henry Grant - 2.5.04

    Jackson Richard- 7.2.07 - sagittal craniectomy/CVR on 5.14.08 @ Mott Children's (UM) - Drs. Muraszko and Buchman



    Jack's montage:

    http://www.onetruemedia.com/shared?p...edium=text_url

    Reply With Quote Reply With Quote
  7. 10-02-2008 04:43 PM #7
    mckennasmum
    mckennasmum is offline
    mckennasmum is just starting out mckennasmum's Avatar
    Join Date
    Feb 2008
    Location
    Tasmania, Australia
    Age
    37
    Posts
    1,925
    Rep Power
    22

    Default

    good luck hope it all goes well
    Susan

    Married to Colin
    Kara 23/02/05
    McKenna 19/09/07 Mild Metopic Fusion, Under care of Craniofacial team
    Sierra 11/01/10
    Reply With Quote Reply With Quote
  8. 10-02-2008 05:13 PM #8
    marisajo
    marisajo is offline
    marisajo will become famous soon enough marisajo's Avatar
    Join Date
    Mar 2007
    Location
    Cincinnati, OH
    Age
    39
    Posts
    1,422
    Rep Power
    23

    Default

    Wish I could hop a flight and join you! Give Jen and Kerre big hugs from me and tell Dr Fearon that Zachary is doing awesome! Can't believe 4 weeks have flown by for us! Sending lots of good luck vibes your way!
    Marisa - mom to:
    - Elizabeth(10)
    - Zachary (7) - metopic CVR 6/04, cranioplasty 3/06, eye muscle surgeries 12/04, 5/05, 5/07, CVR and split-skull bone-graft 9/08 (whew!)
    - Alexander(5)
    - Katherine born 6/25/10
    Reply With Quote Reply With Quote
  9. 10-02-2008 05:21 PM #9
    tracy_girl05
    tracy_girl05 is offline
    tracy_girl05 is just starting out tracy_girl05's Avatar
    Join Date
    Aug 2008
    Location
    Kansas
    Age
    29
    Posts
    2,859
    Rep Power
    26

    Default

    Best of Luck Sadie-- know that we are thinking and praying for you guys!!!!!!!!!!!!! Let me know ASAP!!!!!! Please give PAm a huge hug for me!!!
    Crystal Proud momma to-

    Hailey Lynn- 12/29/07, Left Coronal Cranio baby-surgery with Dr. Fearon 10/27/08

    WE ARE ON THE OTHER SIDE!!!!!!!!!

    http://www.caringbridge.org/visit/haileytracy

    Reply With Quote Reply With Quote
  10. 10-02-2008 06:28 PM #10
    Mother of boys
    Mother of boys is offline
    Safely on the other side Mother of boys is just starting out Mother of boys's Avatar
    Join Date
    Aug 2008
    Location
    Kansas
    Posts
    823
    Rep Power
    16

    Default

    Have a safe flight and travels from the airport, Sadie. I look forward to meeting you tomorrow.


    Kepler 6/12/06-no cranio
    Keeson 5/13/08-saggital, 10/3/08-CVR surgery-Dr. Fearon and Dr. Price


    http://www.caringbridge.org/visit/keesonentz

    Keeson's surgery and recovery photos
    http://www.craniokids.org/support/sh...9825#post79825
    Reply With Quote Reply With Quote
+ Reply to Thread
« Previous Thread | Next Thread »

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts

Forum Rules