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Thread: Hello. New to all this.

  1. #11
    Safely on the other side Mother of boys is just starting out Mother of boys's Avatar
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    Hi, Danielle. I would agree that she definitely looks saggital to me. Our son has saggital craniosynostosis. At his 2 month checkup, our pediatrician looked at his head and said to keep an eye on it, but don't worry. My husband did some research and ended up diagnosing it himself. He got in touch with Dr. Fearon in Texas, and we have surgery scheduled for less than 3 weeks from now. I know exactly how you are feeling. Finding out was devastating, but after "talking" with many moms on here, I am feeling better about things. Feel free to send me a PM anytime if you have more questions. I am sure your little girl will be just fine. It is good that this was discovered early.

    Take care and stay strong (I know that is hard!).


    Kepler 6/12/06-no cranio
    Keeson 5/13/08-saggital, 10/3/08-CVR surgery-Dr. Fearon and Dr. Price


    http://www.caringbridge.org/visit/keesonentz

    Keeson's surgery and recovery photos
    http://www.craniokids.org/support/sh...9825#post79825

  2. #12
    Moderator Shar will become famous soon enough Shar's Avatar
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    Just wanted to say, "Welcome!"

    You kids are adorable! I am wondering if your pediatrician makes housecalls to Arizona ;o) He sounds like a keeper!
    Shar
    Mom to H (11/2007 ~ born with a Metopic Ridge, no surgery needed)

  3. #13
    Bean is just starting out Bean's Avatar
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    Welcome - your kids are SO beautiful! It does look and sound as if your daughter has sagittal cranio. Her head looks JUST like my Jakeys did. It sounds like you are in really good hands.

    Keep asking questions here - anything goes. This group of amazing people has helped me out so much over the last 5 months.

    Good luck,
    Christine
    Jake 4/08: Sagittal Cranio;endoscopic surgery July 2 @ Boston Children's w/Dr. Mark Proctor & Dr. Grondin
    2 month post op - head ratio within normal range - Jake's going GREAT!


    Maggie - 8/05: allergy to peanuts, eggs, severe excema; adores her brother Trying to get her into Atopic Dermatitis Center at Boston Children's Hospital. She NEEDS this!


  4. #14
    Isn't here nearly enough! Elizabeth is on a distinguished road Elizabeth's Avatar
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    Welcome...your munchins are adorable! I am in love with both of them already.

    I definitely think your little sweetie appears to have a sagittal head. Sounds like your pedi is right on top of it, though. Good for you!

    We can't wait to get to know you better!
    Elizabeth

    Hannah 7/05
    Isaac 7/07 bicoronal, sagittal, and right lamboid synostosis anterior CVR 1/9/08...posterior CVR 5/9/08...Tear duct probe/cleaning 2/19/09...Ear tube placement 4/6/09...Tonsillectomy 10/15/10...Full CVR scheduled for 6/29/11
    Jeremiah 2/26/10


    www.friendsofisaac.org

  5. #15
    beccad will become famous soon enough beccad's Avatar
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    I just wanted to say welcome to CK!! Your kiddos are just adorable. I'm sorry you are going through all of this. Just know that we are here for you and ask anything you need of us. I'll keep you in my prayers as you go for the appointments.
    Becca:
    Mom to three wonderful kiddos:
    Noah is 8
    Elijah is 6
    Julianna is 3(Left Coronal Cranio)
    Vanderbilt Children's Hospital Nashville, TN
    Surgery April 15, 2008 (canceled because of a cold and fever)
    Surgery rescheduled June 26, 2008
    2nd surgery April 14, 2011
    WE ARE ON THE OTHER SIDE

    www.caringbridge.org/visit/juliannaharber
    www.harberclan.blogspot.com


  6. #16
    jumpingjacksmom is just starting out jumpingjacksmom's Avatar
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    Hi Danielle... wanted to add me welcome. My son Jack is a sagittal. Our pediatrician caught Jack's fusion at 3 months we had his surgery at month 4... He's our healthy fast moving 5 month old now and doing wonderful!

    I'm sorry that your going down this crazy path, but we've been there and are there for you now. Please let me know if you have questions about anything. We've been there recently and know how it feels to be scared out of mind and confused and unsure and ready to go nuts and all this on top having a new baby! It's great that you've caught this early...

    You're sweet girl will amaze you with how well she handles all this! God Bless!
    Jackson Lemuel born 4/8/2008
    Diagnosed 7/9/2008 - Sagittal Craniosynostosis
    Endoscopic Limited Vault 8/6/2008
    Dr. Genecov & Dr. Weprin



    Click Here For:
    Jackson's Before and Afters

    Jackson's Story

  7. #17
    Tamz Tamz has a spectacular aura about Tamz has a spectacular aura about Tamz's Avatar
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    Hi and welcome to CK I am a cranio adult I had my surgery many years ago i had multiple suture fusion,just wanted to say both your kiddos are adorable I love them sleeping in the car too sweet. good luck on your journey you will have plenty of support here as well. welcome to our "family"

  8. #18

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    hi there, beautiful children!! yes, definately saggital synostosis. our daughter lily has had surgery for sagital at age 18 months. i know this is all unknown but everything will work out for good, she is just lovely.
    anna

  9. #19
    daniellelucille is just starting out daniellelucille's Avatar
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    Thanks everyone! I am SO happy to have found you!!! You will be seeing a lot of me around. Don't get sick of me too fast. :D
    Danielle
    Married to JR (06/17/06)
    SAHM to:
    Lucas (04/07/07) - No cranio
    Jocelyn (08/04/08) - Sagittal Cranio
    Endo Surgery: 01/12/09

    Helmet therapy: 01/27/09 - 03/24/09
    WE'RE ON THE OTHER SIDE!!!


  10. #20
    Annie is just starting out Annie's Avatar
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    Hi Danielle and welcome, your daughter is a beauty, it looks like Sagittal to me...but a CT scan would confirm...keep us posted on her progress and all.

    Proud mom to Ale-Yana 7 + years old(no Cranio), Timothy Sagittal Cranio - DOB-May 30, 2007.

    Surgery April 3, 2009 (CVR) Children's Hospital at Montefiore, New York, Drs. James Goodrich & David Staffenberg.


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