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  1. 08-27-2008 07:10 AM #1
    Jade
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    Default Hi

    My name is Samantha, I'm 19, and I have a metopic craniosynostosis (that was corrected when I was a baby). They tell me that if I did not have the surgery, I would have been mentally handicapped. I was a straight A student, a high achiever, and as of now have high aspirations to become an electrical engineer for a military defense firm.
    I'm looking for people around my age to share experiences with and whatnot.

    You may contact me on AIM at Justsmilestupid or MSN at Justsmilestupid@hotmail.com

    I'm looking forward to talking to people who have gone through what I have.
    Last edited by Jade; 08-27-2008 at 07:39 AM.
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  2. 08-27-2008 08:23 AM #2
    Katie
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    Hi Jade, welcome to Cranio Kids! We have several cranio adults, and a couple of teens here on CK. Thank you for sharing your story with us!
    Momma to Dillon 6/25/04 (metopic and bicoronal) and Aaron 2/24/08, and wife to Doug.
    CVR/FOA 11.16.04 @ 4.5 months old
    Second surgery 1.5.10 @ 5.5 years old (all went excellent!)
    Dr. Ian Jackson and Dr. Karol Zakalik Providence Hospitals, MI
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  3. 08-27-2008 08:45 AM #3
    Janet
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    Welcome to cranio kids Samantha, glad you found us. My daughter who is almost 2 had metopic surgery almost 1 year ago, she is doing great also!!
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

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  4. 08-27-2008 11:04 AM #4
    Wyatt's Mom
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    Welcome! It is so nice to see a metopic cranio adult!! My son had metopic cranio and had surgery in February. He is doing well.
    Thanks for sharing your story!
    Sarah
    Proud mommy of:
    Logan - Jan '06 No Cranio
    Wyatt - April '07 Metopic & Sagittal - Surgery at BC Children's Hospital Feb 27th, 2008
    Cooper - Sept '09 currently have some concerns with his metopic suture, we've seen a neurosurgeon but are waiting and watching



    View Wyatt's Story: http://www.craniokids.org/support/showthread.php?t=2607
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  5. 08-27-2008 11:08 AM #5
    craniomommynbaby
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    Welcome!
    I am not close to your age, but I had some similar experiences. I had surgery for right coronal as a baby, and my parents were also told that I would have brain damage if I did not have the surgery. I went on to be a high achiever that made straight A's and majored in math. There are quite a few cranio teens and adults around now. I look forward to getting to know you better.
    Cindy
    *Skull bone removal surgery in summer of '77 for right unicoronal*
    Mommy to Simon
    *CVR w/ FOA surgery on June 29, 2005 for bicoronal*
    *CVR with bone graft and bone paste surgery on July 15, 2009 for bicoronal and defects*
    *Bone grafts and titanium plates on June 27, 2012 for defects*
    Soul Mate to Chris
    See our cranio journey at
    www.thescofieldfamily.com/craniosynostosis.html AND http://craniomommynbaby.blogspot.com
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  6. 08-27-2008 11:30 AM #6
    lunadale1968
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    So great to hear from you Welcome. My son Bryan has Saggital Cranio with my difficulties from not having the surgery in time. glad to hear you did and are doing great. I wish you the best of luck.

    My Neice Taylor, Bryan and Me at Canobie Lake Park on July 29th 2008
    Kathy
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  7. 08-27-2008 12:23 PM #7
    Tawnia
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    Hi! Welcome to CK! I would love to see a pic of what you look like now :) My daughter has surgery for metopic cranio last October.
    Azia-lynn's Story: http://www.craniokids.org/support/showthread.php?t=2458
    Surgery Pics: http://craniokids.org/support/showthread.php?t=2019

    CVR/FOA Oct 9th, 2007
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  8. 08-27-2008 01:06 PM #8
    frankiesmom
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    Hi Jade. Welcome. Glad you're here, we love to know how our kids can grow to be intelligent confident young adults like you!
    Jackie-mom to frankie born 5/3/2006, right coronal surgery january 8, 2007. also mom to danielle 4/12/2001 no cranio
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  9. 08-27-2008 02:48 PM #9
    melsch
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    Hi Jade! Welcome to CK! It's so great to have another cranio adult on the site!
    Melissa
    Mom to 2 beautiful angels!

    Kayla (8/99)
    Logan (7/07)
    Metopic sugery Nov. 7, 07'

    www.caringbridge.com/visit/loganschaefer
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  10. 08-30-2008 05:37 AM #10
    Zara's mum
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    Hello Jade! Welcome to craniokids! Its great to hear from a cranio teen and hear of your success! I'd love to see a photo!! You'll make loads of friends here!
    Chloe,



    Mum to 3 beautiful children-

    Aaron 12/2/02
    Joey 5/3/06
    Zara 16/12/07 our little princess-right unicoronal. Surgery 29th April 2009. Great Ormond Street Hospital

    Zara's craniofacial journey http://www.youtube.com/watch?v=DtNbSmC8LNU
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