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Thread: this thursday

  1. 08-18-2008 03:34 PM #1
    bugsmom
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    Default this thursday

    i called and bugged the neuro office again..lol...and this time they decided to move up the apt so caden will be seen this thursday at 730 am...maybe being that early if she wants a ct/mri it can even be done same day...the hospital here is pretty good about stuff like that...i cant wait to have an answer and get a solution so my baby can feel better...he has 2 more popped blood vessels in his eyes today from crying and hes been holding the sides of his head all day...then he seems fine for awhile...i was actually able to find a board that has a few moms of babies that had/have hydrocephalus and they were what prompted me to call and bug the dr...so hopefully by the end of the week i will know whats going on...i so appreciate evryones help and support here even though i dont know whats going on yet
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  2. 08-18-2008 04:03 PM #2
    Janet
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    That's great news....it's not a bad thing to bug, your a great Momma!!

    Good luck and keep us updated.
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

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  3. 08-18-2008 05:06 PM #3
    dannlark
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    Way to go Squeaky Wheel Momma!!!!! I can't wait to hear what the Dr. thinks. I'd call the office and see if the Dr. want's to schedule the CT for the same day as your visit. Don't wait until you're in the office to ask...
    Larkin
    Mom to 3 boys: Aidan 9/8/2000 Camden 7/29/2003 Ian 7/29/2007 - Upper end "Mild" metopic. Surgery 8/27/08, Dr. Fearon, Medical City Dallas. We're on the other side!!!
    http://www.caringbridge.org/visit/ianrodriguez

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  4. 08-18-2008 05:19 PM #4
    Wyatt's Mom
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    Awesome job! I'm so glad he can be seen soon! I will pray for you guys on Thursday. I hope you get some answers. Don't give up until you are satisfied!
    Sarah
    Proud mommy of:
    Logan - Jan '06 No Cranio
    Wyatt - April '07 Metopic & Sagittal - Surgery at BC Children's Hospital Feb 27th, 2008
    Cooper - Sept '09 currently have some concerns with his metopic suture, we've seen a neurosurgeon but are waiting and watching



    View Wyatt's Story: http://www.craniokids.org/support/showthread.php?t=2607
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  5. 08-18-2008 06:08 PM #5
    mckennasmum
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    great work, not too long away now!
    Susan

    Married to Colin
    Kara 23/02/05
    McKenna 19/09/07 Mild Metopic Fusion, Under care of Craniofacial team
    Sierra 11/01/10
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  6. 08-18-2008 06:19 PM #6
    mrs j
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    great job mummy, its certainly not a bad thing for mummy to be bugging them, sometimes this is the only way you will get answers, good luck, and let us know how you get on.xxx




    Heather



    BRADLEY 5..... METOPIC CRANIO, cvr/foa performed on 14th February 2008, by Mr Wall at the John Radcliffe Hospital,Oxford.

    Kirsten 7 (kidney duplex,ureteroceole)
    Darren 12
    Marcus 16
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  7. 08-18-2008 06:40 PM #7
    Rhonda O
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    That's awesome!! I hope that they are able to give you some answers!


    Mommy to Zachary 6 yrs old (sagittal, surgery Aug. 24, 2004)
    Justin 3 years old (no Cranio)
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  8. 08-18-2008 09:42 PM #8
    Amy K
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    That's great that ya got in so quickly! Please let us know what you find out!
    Mom to Camden Sagittal Cranio Kid
    Posterior CVR- Fearon/Swift
    Anterior CVR/FOA- Genecov/Weprin

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  9. 08-18-2008 11:03 PM #9
    Tawnia
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    Awesome news...now hope you get some answers there!!!
    Azia-lynn's Story: http://www.craniokids.org/support/showthread.php?t=2458
    Surgery Pics: http://craniokids.org/support/showthread.php?t=2019

    CVR/FOA Oct 9th, 2007
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  10. 08-19-2008 12:18 AM #10
    jumpingjacksmom
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    great news... will be praying for you on thursday!
    Jackson Lemuel born 4/8/2008
    Diagnosed 7/9/2008 - Sagittal Craniosynostosis
    Endoscopic Limited Vault 8/6/2008
    Dr. Genecov & Dr. Weprin


    Click Here For:
    Jackson's Before and Afters
    Jackson's Story
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