Metopic Question
Ok, I hate to start so many threads, but I have a simple question.....
Something I have read in a few places the past few days.... are metopics supposed to have a closed soft spot? Alice doesn't. Hers is small, but definately not closed. I know she is mild, but I was just wondering if all metopics have a closed soft spot.
No....Fiona still had a soft spot before the surgery (not a huge one) but it's huge now. Here is her scan pic before the surgery...you can see the soft spot.
Mom to Noah (no cranio)
Fiona (Metopic):
Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips
In my experience, some do and some don't. Although, (I think) that in the metopics that do have a soft spot, it is probably smaller than in other babies.
Proud Mommy to
Caleb -17
Ethan -13
Joanna -11
Olivia -9
Isaac -5-Metopic Cranio, no surgery;Chiari Malformation and Posterior Fossa Cyst, surgery 4/1/08 & 12/03/08; Pseudomeningocele and CSF leak, surgery 12/18/08; Multiple congenital Heart Defects, Autism, Multiple Birth Defects
http://www.caringbridge.org/visit/i.m.lucky
Logan still has a soft spot. I need to upload her scan.
Amy
Proud mom to two girls
Reagan- 03/27/04..no issues
Logan- 08/01/07..mild metopic cranio-had signs of ICP
Read Logan's story at http://www.craniokids.org/support/sh...ad.php?t=10285
Thanks everyone and keep the responses and pictures coming! I love to know personal experiences rather than what medical articles say. I realize medical articles are based on research mostly, but not every case is the same, so I'd like to know what everyone else's experience is.
Zack's was finger-tip size at birth, but virtually non-existant by surgery @ 8 months.
Marisa - mom to:
- Elizabeth(10)
- Zachary (7) - metopic CVR 6/04, cranioplasty 3/06, eye muscle surgeries 12/04, 5/05, 5/07, CVR and split-skull bone-graft 9/08 (whew!)
- Alexander(5)
- Katherine born 6/25/10
Ian had a VERY small anterior fontanel at 6 months that closed around 7 months. I asked Dr. Fearon about it and he said that he often operates on chldren that still have them, so I guess it could go either way. I have read though that with babies that are born without it or that have it close "early" it CAN be an indication of craniosynostosis.
Larkin
Mom to 3 boys:Aidan 9/8/2000 Camden 7/29/2003 Ian 7/29/2007 - Upper end "Mild" metopic. Surgery 8/27/08, Dr. Fearon, Medical City Dallas. We're on the other side!!!
http://www.caringbridge.org/visit/ianrodriguez
You can't feel Carter's but you can see it on his CT scan. I'll try and figure out how to post his scan on here.
Joy
Wife to Eric
Mother to
Cassie 12/24/01
Catelynn 5/10/04
Carter 1/16/08 metopic November 18, 2008
Children's Hospital Seattle
http://www.caringbridge.org/visit/carterpylkki
Nicholas was metopic with severe Trigonocephaly and although it was very small (hardly noticeable), he did have a soft soft.
Hanna
Proud mom to Nicholas 4 July 2007Metopic
Surgery 10 January 2008
Ryan and Sarah 23 Oct 09 (no cranio)
Nicholas' Photo Montage:
http://www.onetruemedia.com/otm_site/view_shared?p=594735c00cf8e786e715d1&skin_id=701&u tm_source=otm&utm_medium=email
Azia had a tiny one I guess at birth but not much and it was gone soon after.
Azia-lynn's Story: http://www.craniokids.org/support/showthread.php?t=2458
Surgery Pics: http://craniokids.org/support/showthread.php?t=2019
CVR/FOA Oct 9th, 2007
Posting Permissions
Reply With Quote
