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Thread: Louie's Cranio Update

  1. #1
    CranioMommaUSArmywife is just starting out
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    Thumbs up Louie's Cranio Update

    Louie had his Sagittal Craniosynostosis repair June 11 at 3:15pm. He was a champ! He couldn't eat any formula 8 hours before surgery and then no clear liquids 3 hours before surgery. He held and played with him to keep him distracted and he was good. When the doctors came to take him we were nervous but we knew he was in good hands. By 6:30pm we were able to see him. So Billy and I grabbed our things and went to his cribside in the NICU. He was in so much pain. He did not swell up right away. He was hooked up to so many monitors. (I will have some pics up soon) The neurosurgeon talked to us and said Louie did a great job. He showed us the bone he took out. The bone was about 3 inches wide and 7 inches long plus some other little pieces. The 2 bone plates had been growing together and then growing down towards the brain. It was another reassurrance that we did the right thing- to have the surgery. Billy and I stayed at the Ronald McDonald House across from the All Children's Hospital in St.Pete. The McDs house was awesome. It was so very homey. $10 a night and free food!!! It was such a blessing to stay so close to Louie and not have to worry about where to stay and what to eat and drive around an unfamiliar town. We all came home Friday afternoon. His head had swelled a little and was a already shaping differently. He is on children's motrin and tylenol every 3 hours or so and we alternate the motrin and tylenol. When we got home he was back to his normal self laughing and cooing. By saturday morning the swelling was completely down and he looks great, just has a bandage on the top of his head. His stitches come out Friday, June 20. I and Louie will go back to St.Pete and have them removed. My husband must leave to go back to Fort Eustis, Virginia to graduate from AIT. He returns Sunday, June 22. :)
    His surgery went well and we are so thankful. The Lord is good. Yes, we went through a rough patch but God was there with us. It was very encouraging knowing so many people were praying for Louie while he was in the doctor's hands.
    We live in Fort Myers, FL and I work in Bonita Springs/Naples.

  2. #2
    So thankful mimi is just starting out mimi's Avatar
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    Hi there, I am very new to this board but wanted to say I'm so happy Louie's surgery went so well and that you're home! Your story gives me so much hope and comfort. Best wishesto you all.
    Mimi
    Benjamin Hayes 9/18/03*, Leyna Louise 3/1/05, Brandt Colvin 4/15/08
    Sagittal surgery 9/30/08 Helen DeVos Children's Hospital
    Dr. Mann (CFS) and Dr. Foody (NS)
    Brandt's Surgery Photos

  3. #3
    Alison is just starting out Alison's Avatar
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    welcome to ck! im glad your little Louie is doing so well!
    Bicoronal.
    FOA 18 may 1989,
    Attempted squint correction (failed)15 November 1989
    Further corrective Surgery 1 July 2003
    Jaw alignment and chin bought forward 15 Nov 2007


  4. #4
    We're on the other side!! dannlark is just starting out dannlark's Avatar
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    That's such great news!! I'm so glad Louie made it to the other side safe and sound. You're a strong Mommy and he's a strong little boy. Congrats and speedy recovery vibes and prayers coming your way!! Please post before and after pics. if you'd like. We LOVE pictures here and they are so helpful to new parents going through the process.
    Larkin
    Mom to 3 boys: Aidan 9/8/2000 Camden 7/29/2003 Ian 7/29/2007 - Upper end "Mild" metopic. Surgery 8/27/08, Dr. Fearon, Medical City Dallas. We're on the other side!!!
    http://www.caringbridge.org/visit/ianrodriguez


  5. #5
    beccad will become famous soon enough beccad's Avatar
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    Wow he sure did bounce back quickly. I know that is a huge relief for you and your family for this to be over. I can't wait to see pics of your little cutie.
    Becca:
    Mom to three wonderful kiddos:
    Noah is 8
    Elijah is 6
    Julianna is 3(Left Coronal Cranio)
    Vanderbilt Children's Hospital Nashville, TN
    Surgery April 15, 2008 (canceled because of a cold and fever)
    Surgery rescheduled June 26, 2008
    2nd surgery April 14, 2011
    WE ARE ON THE OTHER SIDE

    www.caringbridge.org/visit/juliannaharber
    www.harberclan.blogspot.com


  6. #6
    Bye-bye bi-coronal Abby'sMom is just starting out Abby'sMom's Avatar
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    Default Way to go Louie!

    Thank you for the wonderful update...the Lord is good indeed!
    Mandy,
    Mommy of two gifts from above...
    "Abigail Hope" born 10/23/2007 (bi-coronal)
    and "Julianna Grace" (no cranio) born 5/27/2005
    *Abby had endoscopic surgery on Dec. 26, 2007 at Children's Hospital in Boston.
    [FONT=Palatino Linotype][SIZE=3][COLOR=#008080][COLOR=darkorange]

  7. #7
    book @ www.kaciking.com kking is just starting out kking's Avatar
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    Welcome to the "other side"! Its amazing how quickly they bounce back, isn't it?
    Kaci
    mom to Madi (age 11, CVR/FOA at age 5) and to Austin (age 9, CVR/FOA at 22 mos and age 3). Both also have a condition called chiari malformation type I which is a secondary diagnosis caused by their cranio.
    www.kaciking.com
    www.caringbridge.org/visit/austinking
    email: kaci@kaciking.com

  8. #8
    melsch is just starting out melsch's Avatar
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    Congratulations! I'm so happy to hear everything went so well! Welcome to the other side!!
    Melissa
    Mom to 2 beautiful angels!

    Kayla (8/99)
    Logan (7/07)
    Metopic sugery Nov. 7, 07'

    www.caringbridge.com/visit/loganschaefer

  9. #9

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    That is so awesome! Praise the Lord that your little man is doing well! It is encouraging!
    Proverbs 3:5,6

  10. #10
    is happy happy happy! Wyatt's Mom has a spectacular aura about Wyatt's Mom has a spectacular aura about Wyatt's Mom's Avatar
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    YAY!! I'm so glad that Louie did so well. Can't wait to see pictures!!!
    Sarah
    Proud mommy of:
    Logan - Jan '06 No Cranio
    Wyatt - April '07 Metopic & Sagittal - Surgery at BC Children's Hospital Feb 27th, 2008
    Cooper - Sept '09 currently have some concerns with his metopic suture, we've seen a neurosurgeon but are waiting and watching



    View Wyatt's Story: http://www.craniokids.org/support/showthread.php?t=2607

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