Hi everyone, I have been around for some weeks and I must say that I find this forum very helpful. Thanks to all administrators, moderators and everyone else for keeping this forum very active!
I’m the father of André who was born on October 27 last year in the
Netherlands(we are actually Portuguese but living in the ). When he was 1.5 months we noticed a ridge in his head, but the doctor said it was "normal". I guess a lot of you experienced similar situations, right? After several months being worried about the strange shape of his head, in April another doctor saw him and suspected he had craniosynostosis (the saggital suture closed). Of course as parents we got really scared by the possible need for a surgery and had little information. At that time I was spending hours on the internet and as soon as I saw pictures of other children I realized that my son had it. Later it was confirmed by X-ray that André needs surgery. Netherlands
The surgery is planned for either September or October this year. I will write more in detail in the "our Stories" section.