Hi, My name is Anne and my son Ray was diagnosised with sattigal crainosynostosis - the NP noticed a ridge and enlongated head shape while he was still at the hospital following his birth. He had the strip endosc. surgery at 2 months and is now 4 months old. Our NS (Dr. Kerry Crohn at Cincinnati CH) did not recommend helmet therapy, but rather just "blocking" his head in place at night. So far his head has rounded out nicely. Our next appt. is in Aug. and Ray will be 6 months old.
I am very thankful to all the wonderful people who have helped us along the way. I look forward to getting to know you all better though I don't get a chance to log in very often.