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Thread: 1 step forward, 2 steps back

  1. #1
    mckennasmum is just starting out mckennasmum's Avatar
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    Default 1 step forward, 2 steps back

    So the NS replied to my email friday night from overseas as I said in another thread, its a long weekend here, we fly to Melbourne, have a great 2 days and I call the NS office this morning to make an appt for Mckenna for whatever time she has before we fly back next tues, to be told, the NS has been admitted to hospital while overseas for pneumonia!!!!!!!!!! Her receptionist doesn't know when she'll be back and is in the process of cancelling all her appt for next Monday and she's in surgery all Tues. WTF!!!!! i feel horrible for her but can't anything go right, so now we'll have to go back home to Launceston and deal with things from there and then possibly come back again to see her. I'm so pissed off right now! Ok I know she's sick and don't judge me as a horrible person but when do we catch a break. So all I can do right now is head to the children's hospital on Monday for McKenna's scheduled opthamologist appt and pop into the NS office to see if she's back and where we go from here!!!

    So if she can end up seeing us Wed (although she's already booked out) or thurs I will have to change our flights! We live only an hour flight from melbourne, but for those that don't know Tasmania is an island so we can't just get in the car and drive, the ferry is a 12 hour overnight crossing, and expensive. Its cheap to fly but still have to book.

    Ok so that's where we stand right now! SUCKS!!!!
    Susan

    Married to Colin
    Kara 23/02/05
    McKenna 19/09/07 Mild Metopic Fusion, Under care of Craniofacial team
    Sierra 11/01/10

  2. #2
    Cranio Mentor and Azia's Mommy Tawnia has a spectacular aura about Tawnia has a spectacular aura about Tawnia's Avatar
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    Ugh how frustrating!

  3. #3
    beccad will become famous soon enough beccad's Avatar
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    Susan I'm so sorry about that. I know that frustration about never seeming to catch a break. It will all come together soon. I'm praying for you girl.
    Becca:
    Mom to three wonderful kiddos:
    Noah is 8
    Elijah is 6
    Julianna is 3(Left Coronal Cranio)
    Vanderbilt Children's Hospital Nashville, TN
    Surgery April 15, 2008 (canceled because of a cold and fever)
    Surgery rescheduled June 26, 2008
    2nd surgery April 14, 2011
    WE ARE ON THE OTHER SIDE

    www.caringbridge.org/visit/juliannaharber
    www.harberclan.blogspot.com


  4. #4
    We're on the other side!! dannlark is just starting out dannlark's Avatar
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    Susan,

    Well that just stinks! I was hoping one of us would get some answers. I hope she's back in her office on Monday and you catch her. Why does this have to be so difficult?????

    Keep up the good fight!

    *Larkin
    Larkin
    Mom to 3 boys: Aidan 9/8/2000 Camden 7/29/2003 Ian 7/29/2007 - Upper end "Mild" metopic. Surgery 8/27/08, Dr. Fearon, Medical City Dallas. We're on the other side!!!
    http://www.caringbridge.org/visit/ianrodriguez


  5. #5
    is happy happy happy! Wyatt's Mom has a spectacular aura about Wyatt's Mom has a spectacular aura about Wyatt's Mom's Avatar
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    Oh man, that just sucks. I bet you are so frustrated. I hope when you pop in on Wednesday she can see you so you don't have to go back again.
    Sarah
    Proud mommy of:
    Logan - Jan '06 No Cranio
    Wyatt - April '07 Metopic & Sagittal - Surgery at BC Children's Hospital Feb 27th, 2008
    Cooper - Sept '09 currently have some concerns with his metopic suture, we've seen a neurosurgeon but are waiting and watching



    View Wyatt's Story: http://www.craniokids.org/support/showthread.php?t=2607

  6. #6
    Mindy will become famous soon enough Mindy's Avatar
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    I'm so sorry you have to deal with this right now. I know how frustrating it can be to have to put this off again. Hopefully, you'll get in on Wednesday!!
    Mom to Riana 9/19/05, Shane 7/5/07 (mild metopic cranio- no surgery required), Addison 6/16/12

  7. #7
    Tamz Tamz has a spectacular aura about Tamz has a spectacular aura about Tamz's Avatar
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    I too hope you get in to see her maybe someone will cancel and you will get lucky I will be praying.

  8. #8
    Alison is just starting out Alison's Avatar
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    Thats got to suck! i hope you are able to get in to see her on wednesday or thursday!
    Bicoronal.
    FOA 18 may 1989,
    Attempted squint correction (failed)15 November 1989
    Further corrective Surgery 1 July 2003
    Jaw alignment and chin bought forward 15 Nov 2007


  9. #9
    mckennasmum is just starting out mckennasmum's Avatar
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    thanks, I'm so frustrated and I feel that maybe Larkin and I should have a drink together and get our own NS!!!! Just have to wait until Monday and see what happens. But to top it off, McKenna has started some involutary shoulder shrugs on the left side, like muscle spasms, have no idea what's going on and I notice it while she's sitting and I'm feeding her! Just more things to add to my stress!!!! Anyone's child had something like this!!
    Susan

    Married to Colin
    Kara 23/02/05
    McKenna 19/09/07 Mild Metopic Fusion, Under care of Craniofacial team
    Sierra 11/01/10

  10. #10
    Melbourne Mummy is just starting out Melbourne Mummy's Avatar
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    Susan, I am just catching up on reading some threads while the kids are asleep - I had nooooo idea any of this happened! I completely understand your frustration, if only Alison (NS) wasn't so nice it would be easier to get mad!!!
    Bree

    Proud mummy to:

    *Kade Ty 22 Feb 06 (no cranio)
    *Hudson Drew 16 April 08 (sagittal synostosis - CVR 23rd March 2009) - doing fab! Check out our montage http://www.onetruemedia.com/my_share...edium=text_url

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