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Thread: Did you have to pay for your helmet?

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    kayzie is just starting out kayzie's Avatar
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    Default Did you have to pay for your helmet?

    Did you have to pay for your helmet? If so can I ask how much it was?
    ____________________________________________

    Khadra
    Wife to Grant
    Mom to:
    Lizzie age 5(ADHD, OCD, Asperger's)
    Kayla age 5
    Gage age 2(Speech delays, hearing being tested)
    Max 9 months(plagio)


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    kayzie is just starting out kayzie's Avatar
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    Anyone?
    ____________________________________________

    Khadra
    Wife to Grant
    Mom to:
    Lizzie age 5(ADHD, OCD, Asperger's)
    Kayla age 5
    Gage age 2(Speech delays, hearing being tested)
    Max 9 months(plagio)


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    amizzle is just starting out amizzle's Avatar
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    We paid for our first one $1500! Luckily by some miracle insurance reimbursed us all by $300 dollars, and we have only paid $300 on the following helmets. How much are they telling you yours would be?
    Amy
    Mommy to TWINS
    Carlee & Carson born 9/28/2007
    Carson: Sagittal Craniosynostosis
    Endoscopic Strip Craniectomy December 2007
    Dr. Jimenez & Dr. Barone

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    kayzie is just starting out kayzie's Avatar
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    Quote Originally Posted by amizzle View Post
    We paid for our first one $1500! Luckily by some miracle insurance reimbursed us all by $300 dollars, and we have only paid $300 on the following helmets. How much are they telling you yours would be?
    They charge insurance 1800 and we have to pay 20% which is 360. If Ins wont pay we have to pay 1440. I just wondered what it should cost. Not like we have a lot of options, only one center in our state does this.
    ____________________________________________

    Khadra
    Wife to Grant
    Mom to:
    Lizzie age 5(ADHD, OCD, Asperger's)
    Kayla age 5
    Gage age 2(Speech delays, hearing being tested)
    Max 9 months(plagio)


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    Holly is just starting out Holly's Avatar
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    I beleive both my boys helmets were around $2000. We didn't have to pay because at that time they had medicaid. They scanned their heads and shipped the helmets to I beleive flordia to be made.
    Holly~ wife to Trevor mommy to Tyler and Jakob
    Tyler born 5~23~05 surgery for sagittal cranio 11~17~05
    Jakob born 3~15~07 surgery for sagittal w/slight metopic 9~27~07. Also Jakobs aortic valve on his heart is bicuspid.
    Emmaleigh born 8-13-11

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    Jenny has a spectacular aura about Jenny has a spectacular aura about Jenny's Avatar
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    We didn't have to pay either, because she had medicaid, but I beleive it was somewhere around $1600 each and that was 5 years ago.
    Jenny
    Mikayla ~ February 18, 03 Bi-Coronal Craniosynostosis-read her story http://craniokids.org/support/showth...hlight=mikayla
    Anabelle ~ 10/05
    Jaden Michael ~ 9/08



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    Seagrape is on a distinguished road Seagrape's Avatar
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    Leah just got scanned for her helmet May 6th. Ours should be covered completely by ins. because it was related to surgery. We have BCBSofFL. We were told our "therapist" is out of network so we may end up paying a portion...not sure yet. But they said we have to pay upfront and they have a packet put together for us to submit to get reimbursed.

    They fee we were charged was $2650 total for one helmet, scanning, the therapist who checks it and makes adjustments every 2 wks, all adjustments etc. We had to pay 1/2 upfront and the other 1/2 when we get the helmet. Then they said she will probably need at least one more helmet. She has to wear 3-6 months total.
    Denise - Mom to three beautiful girls! *April 14th made 3 years since Leah's surgery!!

    Sarah - 12
    Rebecca - 8
    Leah - 3 yrs old - born Jan 17, 2008, right coronal cranio diagnosed at 2 weeks old

    Surgery date April 14, 2008 -
    Endoscopic-assisted CVR/FOA
    Joe DiMaggio Children's Hospital (Hollywood, FL)

    ~ Leah's blog

    ~ Creative Kitchen ~ My Food/Recipe Blog ~ cooking with wholesome, REAL foods!


  8. #8

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    Patrick's helmet was not post surgical (he has plagio). Our insurance paid since we met their criteria --greater than 6mm of asymmetry (he had 12mm), older than 4 months, and attempted repositioning for more than 2 months (even though, with his type of plagio repositioning really wouldn't have made any difference anyway. But we did it just to say we tried.)

    Ours was around $3000, we paid $200.

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    kayzie is just starting out kayzie's Avatar
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    Ours isnt surgery related either, he has plagio. We have not met the two months yet though, not on paper anyway, so I guess I shoudl wait another month? He has a large lump at the top of his head where his bones are overlapping now. Im worried they COULD fuse. Im not sure how urgent this is at this point.
    ____________________________________________

    Khadra
    Wife to Grant
    Mom to:
    Lizzie age 5(ADHD, OCD, Asperger's)
    Kayla age 5
    Gage age 2(Speech delays, hearing being tested)
    Max 9 months(plagio)


  10. #10

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    No one really knows what causes the bones to fuse, there are lots of theories, but I do know that you can not cause it or prevent it. Not doing helmet therapy is not going to harm your son so you can definitely stop worrying about that one at least.

    He's six months right? In that case you do have some time. It is most effective in the first year so you don't want to wait too long but I don't think the situation is urgent either.

    Each insurance company has different rules. Ours (Aetna PPO) spelled out very specifically what they would and would not cover. They required that he be over 4 months, that the letter of medical necessity from our doctor had to say we had tried repositioning for 2+ months (even though, like I said, for his type of plagio which was caused by in-utero molding, not a classic "flat spot" it really wasn't going to make any difference) and we had to show through measurements taken by the orthodist that he had more than 6mm of asymmetry.

    The insurance specialist at Cranial Technologies (the company we used, their device is called the DOC Band) actually handled all of the pre-approvals and even told our doctor exactly how to word the letter of medical necessity to make sure it got covered.

    Do you have a prescription already? Can the helmet company help you with the insurance stuff?

    Also, if you haven't already, check out the info at CAPPS kids and the Yahoo plagiocephaly group. both have loads of info on insurance.

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