Did your child have to use a helmet after surgery?
Yes
No
Helmet Therapy?
Did your child have to use a helmet after surgery?
Jennifer
Mom to- Sarah(13), Reese(10), Emily (8.5) & Cody (3)
Emily diagnosed w/ Rt. Coronal Cranio corrected in '04 w/ Dr. Wehby in Portland, OR
Dillon did. It was actually about 5 months afte rhis surgery before it was decided it may help in molding his head. He wore it for a couple of months, but then it becams euseless because he learned how to pop it off
No we didn't need one and I was kind of glad because I can't even keep a hat on him, could you imagine a helmet.
Sylvie (mom to Loic and Kalem(Metopic) surgery was Dec 19, 2005 at Sick Kids, Toronto, ON
Our daughter wore a helmet after her first 2 vaults, they didnt help, the doctors that did the surgery really didnt know what they where doing. After she had her 3rd vault and 2nd forhead advancement, she looks totaly different and even more beautiful than before.
I have talked to and seen helmets work very well, you just have to be patient to see results, and make sure you keep it on them and clean.
Gabe didn't have a helmet. I did my research and was convinced he needed one. His doctor said he'd be fine. I thought he was crazy. What if I dropped him on his head? I considered a football helmet. Then I met my daycare provider. Her son was born with an open skull. His soft spots joined together leaving the entire top of his head as one big soft spot. Turns out our sons have the same doctor. He said the same thing to her and she thought he was crazy. I think it depends on the type of synostosis and the doctor.
our dr. said our son would wear a helmet up to 6 months after his surgery.
i think jules is right, it depends on the type of synostosis.
jeff and lisa
parents to- michael age 4 with autism no CS & lucas age 2 with right coronal CS, surgery 11/14/06.
Clara wore a helmet for molding after surgery for about 6 months. At first the PS said she wouldn't need one. That was one of my questions before surgery, and he assured me that she didn't need one. Well she did, so she got one about 3 months post-op. I will always wonder if she got the helmet right away and had 3 extra months of molding, if she would have needed the second "touch-up" surgery.
It was funny. Clara would never keep hats on either. But she didn't try to take the helmet off after the first week or so.
Cheryl (mom to Clara, born 11/5/02)
profound unilateral hearing loss
Saethre-Chotzen syndrome
Right coronal cranio-CVR/FOA 9/15/03; cranioplasty 4/5/05
ear tubes-6/30/04, 5/9/06
ptosis surgery-7/1/05, 8/13/10
strabismus surgery-10/11/05, 5/9/06
pur dr said he will not require a helmewt after surgery. Of course it has not happened yet so you never know...
Jackie-mom to frankie born 5/3/2006, right coronal surgery january 8, 2007. also mom to danielle 4/12/2001 no cranio
Jackson wore a helmet for 9 months. He didn't like it at first. But he got used to it. He started wearing it before he was even crawling, so he was used to the extra weight. It was when I took the helmet off that his equalibrium seemed off. LOLOriginally Posted by Jennifer
He hasn't worn the helmet in almost 2 months and seems fine.
Sunnie
Mama to 3 Men and a Little Lady
Jay, Justin, Korinne and Jackson,
who was born with congenital diaphragmatic hernia and craniosynostosis.
In Loving Memory of
Pheobe Grace and Audrey Grace
8/13/04-8/13/04
Kiernan wore his helmet for 8 months. It's did wonders! We loved the minor surgery and the helmet for 8 months...
Mom to Kiernan, born 9/20/07, Endoscopic surgery to remove the saggital suture on 11/20/07. Helmet therapy for 8 months.
http://www.craniokids.org/support/im...5&type=profile
Posting Permissions
Reply With Quote
