New from Italy
Hello!
I'm the mother of a little boy dx with sagittal synostosis at 15 months, he will have a CVR surgery the 7th of May (the day he'll turn 18 months...)
Now that we have only 15 days left before the surgery I am really scared but reading this forums is (and has been for the past months) a great confort...
Thank you very much to you all!!!
Vero
Mum of Maddy (2 1/2) and Manu (17 months)
Vero Welcome to craniokids, I am glad you have plucked up the courage to introduce yourself. I hope your son does well during his surgery.
If you have any questions don't hesitate to ask xx
Annmarie mum to Georgia 22/5/02
and Jack 10/3/04 born with Bicoronal synostosis, had FOA in August 2005 at 17months.
http://aolpictures.aol.co.uk/ap/myAl...176240108507.1
Hi Vero, I am sorry to hear that your little guy will need surgery. I'm glad you found us and that we can support you though! Sending up some prayers for you! Make sure you keep us posted on how you and Manu are doing.
Proud Mommy to
Caleb -17
Ethan -13
Joanna -11
Olivia -9
Isaac -5-Metopic Cranio, no surgery;Chiari Malformation and Posterior Fossa Cyst, surgery 4/1/08 & 12/03/08; Pseudomeningocele and CSF leak, surgery 12/18/08; Multiple congenital Heart Defects, Autism, Multiple Birth Defects
http://www.caringbridge.org/visit/i.m.lucky
Hi Vero, welcome to ck, im sorry you are facing surgery, it is a tough time, but you will get through it, our little ones bounce back so quick its amazing. Please keep us informed of your progress and we will certainly keep you and your boy in our prayers, My son had his surgery 10wks ago today, and he is running round like nothing ever happened, fantastic. Goodluck, please feel free to ask any questions or if you just want to voice your concerns, what ever we are for you.xxx
Heather
BRADLEY 5..... METOPIC CRANIO, cvr/foa performed on 14th February 2008, by Mr Wall at the John Radcliffe Hospital,Oxford.
Kirsten 7 (kidney duplex,ureteroceole)
Darren 12
Marcus 16
Hi Vero!
I'm the father of Leonardo who has 3 1/2 months and was diagnosed of craniosynostosis (turricephaly) just after he was born on 8/01/08.
He 's currently monitored in a hospital In Monza and he will probably have surgery in June-July when he will be 6 months.
Which hospital are you attending?.
to cranio kids!!! I'm glad that all the stories have helped you, there are a lot of saggital Mom's on here, your son will do great, I know how scary it is, but babies bounce back so fast. Can't wait to get to know you.
Mom to Noah (no cranio)
Fiona (Metopic):
Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips
Hi Vero
Welcome to cranio kids, Im sorry you little one faces surgery, so does mine come june or july, its a tough time but this site will make you feel loads better about his upcoming surgery, there are plenty of mums for you to talk too about saggital.
its a great place to be.
Becky x
Becky mum and wife
married to Gary
Joley 22
Lauren 20
Ben 15
and last but not least Seth 2 1/2, d.o.b 09/aug/2006 left coronal cranio surgery, 17th june 08 at Birmingham Childrens Hospital England.
WE ARE ON THE OTHER SIDE !!!!!!!
Thank you!! you are very welcoming people!!!
Heather: as many people here I keep popping in the forum to see if there's any news about Patrick... is he already out o surgery???
Leonardo's dad: I live near Milan and after having our boy visited at Firenze, Paris and Bergamo we've chosen the last one because there works a PS trained at Miami children's Hospital and does the CVR. most european NS prefer the strip craniectomy or similar but Manuel is already too old for that type of surgery...
thanksXXX
Welcome, Vero. My son had surgery for metopic synostosis a little over 3 months ago (at 6 months), and he bounced back so quickly, it was amazing. He was back to his old self in just three days. The first picture in the last row of pictures below was taken on the way home from the hospital (surgery was on a Thursday and we went home on Sunday). I'm sure Manu will do just as great - our little ones have such an incredible strength and the surgeons are amazing (and it sounds like you have picked an excellent surgical team). Best of luck to you. Please keep us updated.
Hanna
Proud mom to Nicholas 4 July 2007Metopic
Surgery 10 January 2008
Ryan and Sarah 23 Oct 09 (no cranio)
Nicholas' Photo Montage:
http://www.onetruemedia.com/otm_site/view_shared?p=594735c00cf8e786e715d1&skin_id=701&u tm_source=otm&utm_medium=email
Welcome to CranioKids. My son Gavin had a CVR for sagittal when he was one. Please feel free to ask any questions. You have found a great support network. You will be amazed at how fast your son will bounce back. Sending my thoughts. I know how difficult this must feel right now.
Mom to
Gavin (4 years - total CVR for saggital cranio, October 24, 2007)
Blake (6 - no cranio) and Mischa (2 - no cranio)
Ontario, Canada
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