I'm the mother of a little boy dx with sagittal synostosis at 15 months, he will have a CVR surgery the 7th of May (the day he'll turn 18 months...)
Now that we have only 15 days left before the surgery I am really scared but reading this forums is (and has been for the past months) a great confort...
Thank you very much to you all!!!
Mum of Maddy (2 1/2) and Manu (17 months)