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Thread: CVR at Wake Forest? I have a couple of questions...

  1. #1
    Suricakes
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    Default CVR at Wake Forest? I have a couple of questions...

    Since we decided on surgery for our little dude, I have tried to be strong and keep my fears to myself--but, I am terrified!

    I look at my sweet boy everyday--his sweet smile and his strawberry blond curls--and I worry that we made a mistake when we opted for surgery. What if it doesn't go as planned? What if there are complications? Infection?

    I appreciate all the stories and pictures on this site. I need the reassurance right now that others have been in our position and had great results.

    If there is anyone who has had a procedure done at Wake Forest in Winston-Salem, I would really love to ask you a few questions. Maybe you can PM me if you have a few minutes...

    Thanks.
    Suri

  2. #2

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    Hello. My four year old just had surgery in April at Brenners /Wake forest baptist medical center with Lisa David ( CFS), my son was almost four years old when diagnosed, so we were a very unusual case. Dr David is amazing and Brenners is fantastic. I would be glad to PM, bt I'm not quite sure how to do that :)I would be happy to share some of my experiences.rebecca

  3. #3
    On the other side again! jjmc123 is just starting out jjmc123's Avatar
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    Time and time again cranio kids do absolutely amazing. It's so hard to believe until you see it with your own eyes. Good luck
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione

    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (
    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60
    *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan

  4. #4
    Monkey Monkey's Avatar
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    Hi. My daughter had surgery (endo) with Dr. David at Wake Forest. Everything has went amazing. I would be happy to chat or answer ny questions.
    Kristina~ DD1, July 2004, no cranio; DS, Aug. 2008, no cranio; DD2, Aug. 2011, cranio/metopic (endo surgery at 4.5 mths)

  5. #5

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    I didn't have my son's surgery at Wake but I know how scared you are. You are doing the right thing though. We just got through surgery about a week ago... up until then, no one could convince me that my son was going to be okay until I saw him wake up. So, while I can't relinquish your fears altogether, I can tell you that I went through the same thing and my son is here today, happy as ever. Big hugs Momma!

  6. #6
    Jean
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    I'm waiting to find out if my son needs surgery and I feel just like you do. I am trying to take a ton of pictures and videos just in case, which is such a horrible thought, but I just can't help myself. I find myself crying on the way to work because I Am so scared something could happen to him.

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