+ Reply to Thread
Page 5 of 5 FirstFirst ... 3 4 5
Results 41 to 48 of 48

Thread: Having a tough time

  1. #41
    On the other side again! jjmc123 is just starting out jjmc123's Avatar
    Join Date
    May 2007
    Age
    32
    Posts
    4,569
    Rep Power
    37

    Default

    You saw how well Jesse recovered after the first op, yet isn't it amazing how the pre-op anxiety is 1000x worse? In our case, the hospital stay was easier though since we knew what to do. Hoping that's also the case for you.
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione

    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (
    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60
    *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan

  2. #42
    tammylh is on a distinguished road tammylh's Avatar
    Join Date
    Jun 2011
    Location
    San Diego
    Age
    40
    Posts
    2,087
    Blog Entries
    22
    Rep Power
    15

    Default

    It is 1000x worse and I just don't understand why. Guess it doesn't really matter why. It just is.

    Last night he kept waking up every few minutes just screaming. I finally put him in our bed with us. I've never done that before, but something was really bothering him. He finally went to sleep around 1 am and I put him back in his crib. He slept until 5:30. He normally wakes up around 6. I have no idea what happened. The last time he had so much trouble was when he was 2-4 months old and had silent reflux. But he hasn't had issues with that in a year. He has had a bit of diarrhea, but he seemed fine and he's been sick before and slept just fine. Just very strange. I felt so bad for him.
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey

  3. #43
    On the other side again! jjmc123 is just starting out jjmc123's Avatar
    Join Date
    May 2007
    Age
    32
    Posts
    4,569
    Rep Power
    37

    Default

    I remember the days leading up to Logan's last surgery I would just go into his room and watch him sleep. Normally I'm the parents who is like woohoo! Bedtime!! My time!! But man the anxiety and fear was something awful. All I wanted was to hug my little man or have time alone to cry. I still get teary eyed thinking back to that.

    On to a more positive note, once the surgery was done and we got through the first night I was like that was it? So so so so much easier to handle post op. in fact, while I don't wish future skull surgeries on Logan, I'm no longer fearful of them because of how well the recovery went.

    Just think, come Labor day, less than a month away, you'll be relaxing and won't even believe that all of this is behind you!
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione

    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (
    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60
    *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan

  4. #44
    tammylh is on a distinguished road tammylh's Avatar
    Join Date
    Jun 2011
    Location
    San Diego
    Age
    40
    Posts
    2,087
    Blog Entries
    22
    Rep Power
    15

    Default

    Yeah, he's getting sick of all my hugs and kisses! He has even pushed me away a few times. And I get so sad because sometimes he sleeps in and I have to leave for work before he gets up. Not often, but sometimes. That use to not bother me, but lately it makes me sad.

    He slept fine last night. I think his 2nd molars are coming in and that was what was bothering him the night before. I can't give him anything though because of the surgery. :( I usually give him Advil, but they said not to. He has all his other teeth, so the 2nd molars are all that's left. Poor little guy would start teething when I can't help him.

    A week from Monday we'll be on our way to Dallas, and a week after that we will be on our way home. Can't wait to be back home after all this.
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey

  5. #45
    tammylh is on a distinguished road tammylh's Avatar
    Join Date
    Jun 2011
    Location
    San Diego
    Age
    40
    Posts
    2,087
    Blog Entries
    22
    Rep Power
    15

    Default

    One week from today. It is almost over.
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey

  6. #46
    fitmomof2ae will become famous soon enough fitmomof2ae's Avatar
    Join Date
    Jan 2009
    Posts
    4,267
    Rep Power
    32

    Default

    I know...I was thinking about you today. I was thinking...only one more weekuntil Jesse's second surgery. You'll be on the other side for good soon!


    Sagittal surgery - 02/26/2009

    Second surgery suggested to correct a bump on the head and fill in soft spots.

  7. #47
    On the other side again! jjmc123 is just starting out jjmc123's Avatar
    Join Date
    May 2007
    Age
    32
    Posts
    4,569
    Rep Power
    37

    Default

    2 weeks from today it'll all be over. Almost there! Wishing you the best.
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione

    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (
    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60
    *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan

  8. #48
    tammylh is on a distinguished road tammylh's Avatar
    Join Date
    Jun 2011
    Location
    San Diego
    Age
    40
    Posts
    2,087
    Blog Entries
    22
    Rep Power
    15

    Default

    Yeah, if I can just get through the next couple weeks. I lost it this evening. Every time I look at him I just break down. This just sucks. I just keep thinking about last time when he cried for 2 hours straight the day after surgery and I didn't know what was wrong. I felt so helpless. We gave him pain meds, but he just kept crying. Then they gave him some Tylenol and as soon as he got it down it came back up and then he was fine. Poor little guy just had an upset tummy and here I was having them give him more pain meds which probably just made it worse. I just can't stand the thought of him going through that again. I wish he could tell me what is bothering him. He might be able to this time. His speech and understanding is getting more advanced almost daily, so I hope he can tell me what is bothering him.
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey

+ Reply to Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts