I've posted about Miss Rylee a few times now. Shes been through 4 CT scans, an appointment with a cranial facial surgeon, and a neurologist...and still no answers! She hasn't been diagnosed with cranio but you guys are the only people I have to turn to. Rylee is doing so well developmentally, shes beautiful, and is my little comedian but I can't shake the feeling somethings not right. And I feel horrible like I can't accept her the way she is. But I can't help but notice her extremely flexible joints, wide chest, small stature, and frontal bossing. I dont know why I am posting. I justfeel very confused tonight. We went to a friends tonight and her daughterIs one week older than RyRy and they look so different it kinda scared me. We have a long awaited appointment with the geneticist in September but it seems so far away. If any of you have seen or heard of anything with similar symptoms please let me know : Frontal bossing WITH ridgingMacrocephalylarge chest Small stature (she is only 26 inches at 1 year)Hypermobile jointsGERDHere are some pictures: