Hi everyone. About a week ago my son was diagnosed with Metopic Craniosynostosis (Trigonocephaly). I saw doctors Wisoff and Thorne at NYU. Both called it a mild case that falls into a "gray zone" but felt that ultimately, if it were their child, they would do surgery. They told me to come back in a month and take the time to do research, see an opthamologist, and watch how the ridge progresses. I should be getting an appointment to see Dr. David Staffenberg soon. From what I researched he is the very best and I am putting a lot of faith in meeting him and figuring out whether or not CJ needs surgery.
At this point I have done so much research I am basically rereading the same websites just to pass the time. It would be really helpful if I could see pictures of babies with Mild/Moderate Metopic before and after surgery. Also, Mild/Moderate Metopic babies who did not have surgery then and now.
I also haven't seen any pictures of the scarring which I am very concerned about. If the decision boils down to cosmetics I don't know which will be worse, a mild/moderate ridge with mild narrowing of the forehead or the scar from the surgery? Anyone willing to post pictures of their babies scar, especially after time has passed, would also be really helpful.
Thanks so much,