Another newbie from england!
Hi all, just wanted to introduce myself really. I'm Kelly and from Exeter in England. My daughter Jasmine is 15 months and has metopic cranio, she is scheduled to have an operation next month on the 19th February at Great Ormond Street Hospital in London. I first noticed a ridge on her head when she was around 5 months old, although looking back on photos now it is apparent from when she was about 2 months but we didn't notice it at the time. It sounds stupid now but we didn't think the ridge was anything to worry about, we thought that it was just the shape of her head. Over the next few months it gradually got worse and one day I typed "ridge on head" into google and found out about craniosynostosis. I looked at photos of other babies and I knew then that it was likely she had metopic cranio. We made an appointment with our doctor who referred us to a local paediatrician, he diagnosed her as having metopic cranio and referred us on to see Professor Hayward, who is a surgeon at Great Ormond Street. He told us she has a mild case of metopic synostosis and trigonecephaly and that it was up to us whether or not we wanted to go ahead with the operation for 'cosmetic' reasons. At first when he told us of all the risks our inital reaction was that we didn't want to put her through it, but over the next few weeks we thought about it a lot and have decided that it is the best option for her and we think we are doing the right thing... So fingers crossed it will be fine, it's really reassuring to read other people's posts and seeing photos of how quickly other kids have recovered gives me hope.
Kelly x
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Metopic
