Hi everyone! I found this site when my pediatrician thought TJ had bilateral lambdoid ridges. CT completed and find out that nope, he has a brain deformity, we deal with the horror of that for a few months and now Dr. Kelly sees him and says oh, and by the way he has trigonocephally. As far as severity he gave it a 5 out of 10, not sure what that means really. We saw Dr. Tulipan the same day. Both Dr. Tulipan (nuerosurgeon) and Dr. Reimchisel (neuro/genetics) said TJ does not have any pressure on the brain (we have had a MRI too). TJ is a little behind on develpment (due to abnormal brain development) but we don't feel there is any reason he won't catch up. I would love for you all to take a look at his pics and give me advice. Both Kelly and Tulipan said to think about it because it was a major surgery and then let them know, does that mean it is not necessary? Has anyone opted not to do surgery and if so what happened? We also email Dr Fearon but have not heard back. Thank you for this site!!