Surgery Thursday may 17
My 15 month old Charlie is having surgery next Thursday. He is moderte metopic. I feel like this is all happening so fast! Dr. Staffenberg is doing it at NYU with Dr. Harter.if anyone has any tips on how to get through the post op days I am open to any and all suggestions!! Thank you!!
Good luck!
Cindy
Mom to Logan (12/8/2006) - Left Coronal
Hospital - Connecticut Children's Medical Center (CCMC)
Surgeons - Dr. Kanev & Dr. Casteglione
1st Surgery (7/21/2007) - CVR & ear tubes
2nd Surgery (2/18/2011) - CVR #2
Patch therapy for amblyopia (lazy eye)
8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60*** 8/6/12 - 20/50
http://www.caringbridge.org/visit/logansullivan
Hi Jessie, I wish you the best of luck with Charlie's upcoming surgery! I looked at you pictures and you son looks a lot like my son. Reid is 10 months now and is seeing a specialist in June. I am just wondering if your son's head changed between his 8-9 months pictures and now? I saw that at his 1 year he wasn't requiring surgery and now is at 15 months. Thanks, I hope you don't mind me asking questions.
Hi, Jessie! May 17 is a special day for us...it will be my Henry's first cranioversary! We'll be keeping you close in prayer!
Abby, mom to Henry...2/13/11...metopic and sagittal cranio...CVR 5/17/11 at 13w 2d...Vanderbilt Children's Hospital with Drs. Kelly and Tulipan.
...thanking God we are on the other side!!!!
Thanks everyone! Tracey, the first CFS we went to did not think he needed surgery.i was thrilled initially but then I just couldn't stop thinking about it so we took him for a second opinion to dr. Staffenberg at NYU. Tis was the beginning of March. He said he wanted to see him again in two months. For some reason, this made me feel better than being told by the first surgeon that all was OK. I felt like we weren't being abandoned and sent on our merry way and that was comforting. He told us to take weekly pictures and when we went back on may 1 he thought things had progressed a bit. We then went to a pediatric neurosurgeon at NYU who said to me "if this were my child I would do the surgery" and that sealed the deal. Oddly, I was relieved. My hunch had been telling me since he was first diagnosed at 12 months that we would end up doing surgery. I feel as though we are making the right decision for him, but it's hard and I'm nervous! I'm preparing myself by spending a lot of time on this forum and it's incredibly helpful.
good luck to you
my son had surgery for metopic cranio on may 13 3 years ago with dr staffenberf. he is a great doctor you are in good hands.
be strong and good luck
My daughter had surgery with Dr S and Dr Weiner almost 1 year ago. Please feel free to contact me with any Q's. Best of luck!
Samanthas Dad
Madeline - Born 04-21-11 No Cranio
Samantha - Born 1-31-11 ----------- Posterior CVR 6-2-11 with Dr Staffenberg and Dr Weiner @ NYU
No tips- we are having our surgery May 23rd. Good luck!
Diagnosed Bicoronal on 3/20/2012
CVR on 5/23/2012
Check out our blog: http://www.mallorysjourney.blogspot.com/
Good luck tomorrow!!
Mommy of Chloe. CVR and FOA May 22nd 2012 at 11 months old with Dr Fearon for Right coronal cranio.
If God answers your prayer, He is increasing your FAITH. If He delays, He is increasing your PATIENCE. If He doesn't answer, He has something better for you~ Karen Phillips
Post op
The surgery went well. Yesterday was not as bad as I thought it would be. Today though...that's a different story. He is so swollen and cranky and won't drink much nevermind eat. I feel like I can't see the light at the end of the tunnel yet. Very upsetting to see my baby like this.
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