So sorry you got that news--but it is great you found the silver lining and have that positive outlook! Just started helmet therapy here. Had our first 23 hour day yesterday and I am a wreck about all of it! Hope your 3 months goes by quickly!
So sorry you got that news--but it is great you found the silver lining and have that positive outlook! Just started helmet therapy here. Had our first 23 hour day yesterday and I am a wreck about all of it! Hope your 3 months goes by quickly!
Sarah Beth
Mommy to Mary, born 1/11/12
Diagnosed with Sagittal 3/16/12
Endoscopic surgery 4/17/12 in KC with Dr. Igbase
Helmet Therapy started on 4/19/2012
So glad to hear the temples are getting better! He's so cute. :)
Tammy
Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
Aug 23, 2011 - CVR/FOA #1
Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)
We are on the other side AGAIN!!!
Jesse's Cranio Journey
He's so handsome and Doesn't look like a baby anymore...definitely a little boy. They just change so fast!
Anyway, I think his head looks great in the pics. If you didn't know anything about the cranio you wouldn't even notice anything "different" about his head.
Andrea
Proud mom to Cooper - born 5/2/11
Endoscopic surgery for moderate metopic cranio with trig - 7/26/11 at Children's Mercy with Drs. Igbase and Jiang
Currently in helmet therapy
Thank you ladies!!! it's crazy ....he went from baby to boy practically over night!!!
Lauren
Mommy to Gabriel James
Born 4/11/11 Diagnosed 5/25/11 Metopic w/ moderate to severe Trigonocephaly
Endoscopic Surgery 6/27/11 Dr. Edward Ahn
Johns Hopkins Children's Center Baltimore
Started Helmet Therapy 7/7/11
Graduated Helmet Therapy 10/12/12
We are on the other side!
Gabe's Cranio Story www.youtube.com/watch?v=gDNicjZY9ag
www.caringbridge.org/visit/gabrielhassinger
My Blog Confessions of a Cranio Mom
I'm sorry you were disappointed, but I'm glad you are starting to see some improvement. I think he looked great in his 1 year photos.
Sagittal surgery - 02/26/2009
Second surgery suggested to correct a bump on the head and fill in soft spots.
Soooooo we just had our 13 month post op appointment and I was totally expecting to walk out this time helmet free..... And to my surprise the NS wants to maximize his correction time and keep him in his helmet for another three months which will be a total of 16 months when we FINALLY finish. Good news is his head progression is coming along beautifully. I attached a scan that compares his head one week post op to his head shape as of yesterday..... I found myself fighting back the tears when I could see how far he has come. Endo for metopics is a slow process but we are getting there one day at a time
image-1588943149.jpg
Last edited by BabyGabey; 08-03-2012 at 11:18 PM.
Lauren
Mommy to Gabriel James
Born 4/11/11 Diagnosed 5/25/11 Metopic w/ moderate to severe Trigonocephaly
Endoscopic Surgery 6/27/11 Dr. Edward Ahn
Johns Hopkins Children's Center Baltimore
Started Helmet Therapy 7/7/11
Graduated Helmet Therapy 10/12/12
Gabe's Cranio Story www.youtube.com/watch?v=gDNicjZY9ag
www.caringbridge.org/visit/gabrielhassinger
My Blog Confessions of a Cranio Mom
The results are amazing! Great job
Carmen
Mother of 2 Girls, 4 Boys!
Mateo Tolentino 10/21/09
Dx - 07/08/10 Sagittal Synostosis Surgery Date: 08/23/10
Dr Singh (CFS) Dr Shafron (NS)
We are on the other side
Lucas Jeremiah 11/25/10
Dx - 03/31/11 Plagio/TorticollisHelmet Therapy 06/03/11
Dx - 07/20/11 Mild Metopic W/Trig (wait and see)
That looks amazing!
01/27/2012: Diagnosed left rear fused lambdoid suture
02/09/2012: Endoscopic surgery
02/28/2012: Helmet therapy started
04/02/2012: Helmet therapy ended
Bummer about the additional helmet time, but the change in his head shape is amazing.
Does he try to take his helmet off? I had the hardest time toward the end of our rime getting Cooper to leave it on his head. I hope that part's easier for you!
Three months will fly by!!
Andrea
Proud mom to Cooper - born 5/2/11
Endoscopic surgery for moderate metopic cranio with trig - 7/26/11 at Children's Mercy with Drs. Igbase and Jiang
Currently in helmet therapy
I'm so sorry for the disappointment with the helmet, however, WOW, fantastic progress! Your avatar also looks fabulous!
Cindy
Mom to Logan (12/8/2006) - Left Coronal
Hospital - Connecticut Children's Medical Center (CCMC)
Surgeons - Dr. Kanev & Dr. Casteglione
1st Surgery (7/21/2007) - CVR & ear tubes
2nd Surgery (2/18/2011) - CVR #2
Patch therapy for amblyopia (lazy eye)
8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60*** 8/6/12 - 20/50
http://www.caringbridge.org/visit/logansullivan
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