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Thread: On our way to the hospital... again!

  1. 04-25-2012 06:24 AM #1
    'lil C's mama
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    Default On our way to the hospital... again!

    We are on our way to the hospital for Cristiano's CVR. Keeping our fingers crossed that it all goes according to plan today, as one month ago we were sent home at literally the very last moment due to a shortage of ICU beds. My little guy is cooing and giggling in the back seat (PS, I'm not driving) and I'm so sad to know that it will be days before I hear that again. But can't wait to get this over with, and to finally (after 5 months of waiting!) be on the other side. Thanks for all the advice and support during this journey - I feel stronger and more informed to face this day and those to come :)

    Brandy Marino
    Proud mama of:

    Gianni Angelo ~ 9.17.09 ~ No Cranio

    Cristiano Luca ~ 9.12.11 ~ Sagittal Cranio

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  2. 04-25-2012 07:17 AM #2
    Janet
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    Best of luck today! praying for a speedy recovery.
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

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  3. 04-25-2012 07:49 AM #3
    TreeGazer
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    Thinking of you today!!
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  4. 04-25-2012 08:38 AM #4
    C.Mydas
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    Praying
    Mommy of Chloe. CVR and FOA May 22nd 2012 at 11 months old with Dr Fearon for Right coronal cranio.

    If God answers your prayer, He is increasing your FAITH. If He delays, He is increasing your PATIENCE. If He doesn't answer, He has something better for you~ Karen Phillips
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  5. 04-25-2012 08:49 AM #5
    BabyGabey
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    Best of Luck today. You and the little man with be in my thoughts and prayers today xo


    Lauren
    Mommy to Gabriel James
    Born 4/11/11 Diagnosed 5/25/11 Metopic w/ moderate to severe Trigonocephaly
    Endoscopic Surgery 6/27/11 Dr. Edward Ahn
    Johns Hopkins Children's Center Baltimore
    Started Helmet Therapy 7/7/11
    Graduated Helmet Therapy 10/12/12
    We are on the other side!

    Gabe's Cranio Story www.youtube.com/watch?v=gDNicjZY9ag

    www.caringbridge.org/visit/gabrielhassinger

    My Blog Confessions of a Cranio Mom








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  6. 04-25-2012 10:42 AM #6
    Sophia's_mom
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    Good luck today! Praying for a speedy recovery and lots of coos and smiles for mama very soon.
    Tessa - mom to Sophie and Ben
    Little Miss Sophie - 12/22/08 - Sagittal - Endo surgery 4/16/09 @ St. Louis Childrens
    Baby Boy Ben - 12/14/11 - No Cranio!
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  7. 04-25-2012 11:03 AM #7
    tammylh
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    Good luck today! And you may here that giggle sooner than you think. My little guy was laughing within 24 hours. Hoping for a speedy recovery!
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey
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  8. 04-25-2012 01:10 PM #8
    AJ's Mommy
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    Praying for you!!
    ~~Shelby~~

    AJ~Sagittal Craniosynostosis
    ~Surgery 10-6-2009 At Seattle Children's Hospital
    ~Dr. Ojemann and Dr. Gruss~

    Cranio Care Bears
    www.craniocarebears.org
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  9. 04-25-2012 05:54 PM #9
    Nezzy
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    Good luck today. I hope all goes well.
    Heather
    Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
    http://www.caringbridge.org/visit/NicholasNezich
    http://www.onetruemedia.com/shared?p...3242&skin_id=0
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  10. 04-25-2012 07:26 PM #10
    jjmc123
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    I hope it went well!
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione
    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60     *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan
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