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Thread: Starting to think about surgery #2

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    tammylh is on a distinguished road tammylh's Avatar
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    Default Starting to think about surgery #2

    I've been doing pretty good and haven't thought much about Jesse's 2nd surgery, but the last few days it seems to be coming to mind much more often.

    In about 2 months we'll get a date for sometime in September. In some ways I really want to get that date, just to know when it will be over, but then I remember when I got the date for his first surgery. It made it all so much more real.

    All the same feelings are coming back. Not in full force yet, but they're starting to surface.

    Looking on the bright side though, I feel so much more prepared this time. I know exactly what to expect. I know for certain that he will do great. I never believed it when you all told me that before his first surgery, but this time I know it for a fact.
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey

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    gijohnnysgal is on a distinguished road gijohnnysgal's Avatar
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    I am so sorry, Tammy.
    Abby, mom to Henry...2/13/11...metopic and sagittal cranio...CVR 5/17/11 at 13w 2d...Vanderbilt Children's Hospital with Drs. Kelly and Tulipan.

    ...thanking God we are on the other side!!!!

  3. #3
    tammylh is on a distinguished road tammylh's Avatar
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    Thank you Abby. I'm still doing alright, but I know that freak out mode is going to be coming back full force. Just hoping it happens later rather than sooner.
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey

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    Administrator *Jessica* is on a distinguished road *Jessica*'s Avatar
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    Tammy, I think you have a great attitude considering your year. If you do go into full freak out mode, you know we are here for ya girl! Let us have it, that is what we are here for! :)
    Jessica
    Jeffrey James
    Metopic, Surgery June 2009, Vanderbilt

  5. #5
    tammylh is on a distinguished road tammylh's Avatar
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    Jessica - Definitely. You all will get so see my crazy coming out again...

    Since Jesse will be about the same age as Monkey was when he had his surgery, I'll probably be annoying the heck out of Kristin Not really sure what to expect with him having surgery at 19-20 months of age.
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey

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    rtkate is on a distinguished road rtkate's Avatar
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    Gwen was a little older for her second surgery, but she amazed me how well she did in the hospital. As everyone always says, Cranio kids are so strong!
    Kate

    My babies

    Connor: 6/7/08 metatopic ridge, no cranio, helmet therapy for plagio due to torticollis

    Gwendolyn: 9/30/09 right coronal and Saethre Chotzen Syndrome, CVR/FOA 7/26/10, ICP detected January 2012, Cranial Vault Distraction surgery 3/8/12, Distractors removed 6/14/12, CSF Leak repair at CHOP.

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    Kate Carey-Trull is on a distinguished road Kate Carey-Trull's Avatar
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    Best of luck with everything -- tough to get a date but then you can keep moving forward, right? You can always share your crazy with us :)
    Kate
    Mom of Lexi, 10/9/03, no cranio
    and Cameron, 1/3/09, had pi procedure for sagittal cranio April 21, 2009 at CT Childrens Medical Center, Dr. Martin

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    Amy K will become famous soon enough
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    Mom to Camden Sagittal Cranio Kid
    Posterior CVR- Fearon/Swift
    Anterior CVR/FOA- Genecov/Weprin


  9. #9
    tammylh is on a distinguished road tammylh's Avatar
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    Might have a date soon. I'm trying to see if we can have the surgery in late July or Aug. I have a lot of stuff coming up at work and as long as it doesn't pose more risk doing the surgery a month or two earlier, than we will probably have a date in a couple weeks.

    Wow... can't believe I have to start thinking about this again. It's a bit surreal having to think about schedules and travel plans and pre-ops again.
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey

  10. #10
    gijohnnysgal is on a distinguished road gijohnnysgal's Avatar
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    I can't imagine going through another surgery...or having to travel for it... At least the Army is keeping us here for a while, so we're close to Vanderbilt if Henry needs another surgery! We're off to the pediatrician in a bit because he's asking like he's acted the past two times when he's had ear infections. If he has another one, that will be our third round of antibiotics in about 5 weeks.
    Abby, mom to Henry...2/13/11...metopic and sagittal cranio...CVR 5/17/11 at 13w 2d...Vanderbilt Children's Hospital with Drs. Kelly and Tulipan.

    ...thanking God we are on the other side!!!!

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