Hi to everyone,
I've been lurking through these forums for a few weeks now, but decided it was time for me to share my story. I have a 6 month old (on the 29th) named James who was diagnosed with moderate metopic craniosynostosis at 2 weeks. He's scheduled for surgery on the 10th of April at our local Children's Hospital. From everything I've read and researched, I believe his was due to biomechanical factors like womb positioning and constriction. The midwife always said he was head down and I felt like my uterus reached its growth limit towards the tail end of my pregnancy. I was also 1 week overdue when I went into labor, and had to get a c-section after three hours of pushing since he was taking forever to come out. Little did we know it was because of his fused suture!
Needless to say, when the doctor said something was wrong with his head and surgery was imminent, I was absolutely devastated. I'm dealing much better with it now. I just don't want the surgery to change his personality or anything about him. I know it's for the best. I just hope there are no long-term consequences to getting it. Not getting it is unimaginable, I know. :/ He's an amazingly healthy and wonderful baby. He's on target development-wise and doesn't have any other health problems. We have his pre-op appointment next week. Are there any questions I should be asking?
Here's a few pics of him to get an idea of his condition:
Any advice/comments would be greatly appreciated.