Please let me know, I'll pm you pictures
Thanks in advance!
Please let me know, I'll pm you pictures
Thanks in advance!
I have Cranio, and my son has Cranio.. I'm no expert but I could give you an opinion..
Mitchell G
"I would rather be hated for who I am, then loved for who I am not" - K Cobain.
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Cranio Kids was started by a mother and father looking for information on craniosynostosis. In June of 2004 their son Dillon was born with bicoronal and metopic craniosynostosis. After doing research on the condition, they noticed there were few places for information and support. They decided to do something about it, and Cranio Kids was born.
huh?
Sylvie (mom to Loic and Kalem(Metopic) surgery was Dec 19, 2005 at Sick Kids, Toronto, ON
Who are you? You are very right about the history of CK, but who are you?
As for the OP, if you would like access to the picture forum and are comfortable sharing your pics there, people will be happy to give you their opinion.![]()
Lauren
Mom to Matthew (sagittal, surgery 11/9/01 at NEMC in Boston) and Danny![]()
I am curious as well. Since my son's diagnosis, I have spent a lot of time examining his head and my own. None of our doctors have looked at mine or my wife's heads. My head has always been very flat in the back. I have a knot where the lambdoid meets the saggital, like a small bump. I always assumed it was normal. The more I look at skulls online, the more I feel it is not normal. I have a dip where my coronal suture is as well. My son has a very large ridge where his coronal suture is, but that is from the large gap the fused sutures have caused. Since my son has his squamosal and sagittal sutures fused, the coronal and right squamosal are wide to compensate. The more I feel my head, the less symmetric it seems. Perhaps I am just being paranoid at this point. It has made me question surgery at times. However, now as I look at my son I notice that his left eye is lower than his right. So I am sure that the doctors are correct about him needing surgery. I just wonder if I may have had it as a kid. I don't have any baby pictures of myself because I was raised in DFS. I know of one baby pic, I remember once seeing, was one of me pulling my hair while feeding on a bottle. With my son now pulling his hair out, it really makes me wonder. Okay, I have babbled enough. I am afraid I am starting to develop OCD around this whole thing. I think yesterday's maintenance of this site was a much needed mental break for me. I work in front of a PC, so I am at this all day.![]()
Michael M
Father of Lil' Mikey (6-20-11), Sagittal and Squamosal Synostosis
CVR February 29, 2012 @ St. Louis Children's Hospital
On the OTHER SIDE!!!