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Thread: Post op concerns

  1. #11
    BabyGabey BabyGabey's Avatar
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    Poor little Z!!! Prayers that he gets better quickly and back home in time for the perfect Christmas present. xo


    Lauren
    Mommy to Gabriel James
    Born 4/11/11 Diagnosed 5/25/11 Metopic w/ moderate to severe Trigonocephaly
    Endoscopic Surgery 6/27/11 Dr. Edward Ahn
    Johns Hopkins Children's Center Baltimore
    Started Helmet Therapy 7/7/11
    Graduated Helmet Therapy 10/12/12
    We are on the other side!

    Gabe's Cranio Story www.youtube.com/watch?v=gDNicjZY9ag

    www.caringbridge.org/visit/gabrielhassinger

    My Blog Confessions of a Cranio Mom









  2. #12
    Corrected mild metopic Monkey'sMommy has a spectacular aura about Monkey'sMommy has a spectacular aura about Monkey'sMommy's Avatar
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    Oh my gosh! I'm so sorry you are going through this right now. I'll be thinking about you and little Z and hoping he is healthy and home soon.
    Kristin, Chronic Lyme Disease
    Big Sister Bear 9/2005
    Little Brother Monkey 6/2009, Metopic Cranio dx at 12 mos, CVR/FOA at 20 mos.Drs. Martin and Castiglione, Connecticut Children's Medical Center (Autism Spectrum Disorder)
    Monkey's Blog: http://www.MetopicMonkey.blogspot.com

  3. #13
    Nezzy will become famous soon enough Nezzy's Avatar
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    Just now seeing this. Poor baby. Glad they finally figured it out. I hoe he gets better soon! Keep on the iron it should help his hemoglobin come up.
    Heather
    Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
    http://www.caringbridge.org/visit/NicholasNezich
    http://www.onetruemedia.com/shared?p...3242&skin_id=0

  4. #14
    Jenniferamoore2002
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    Glad they figured out the problem!! There isn't much worse than the unknown!! Now they at least know what they need to do!!! Praying for ya'll!!
    ~Jennifer~
    Mother to four:
    AnnaMichelle (16 years)
    Shelby (11 years)
    Campbell (8 years)
    Ben (5 years)

    Surgery #1(4 mo.old) - CVR
    Surgery #2(20 mo. old) -CVR
    Surgery #3 (5 years) to fill-in soft spots/ round out fore-head

  5. #15
    Mindy will become famous soon enough Mindy's Avatar
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    I'm glad that they could identify a cause for the temp. Hopefully, he will now be on the road to a full recovery! Prayers!!
    Mom to Riana 9/19/05, Shane 7/5/07 (mild metopic cranio- no surgery required), Addison 6/16/12

  6. #16
    mamochka
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    Hope little Z will get better soon! for him!

  7. #17
    tammylh is on a distinguished road tammylh's Avatar
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    Thinking of little Z and hoping he recovers quickly.
    Tammy
    Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
    Aug 23, 2011 - CVR/FOA #1
    Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)

    We are on the other side AGAIN!!!

    Jesse's Cranio Journey

  8. #18
    On the other side again! jjmc123 is just starting out jjmc123's Avatar
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    Oh poor little guy!!! I always hear that as a risk, but you never think it'll happen to your kid. I hope he bounces back quickly. This is the last stress you need.
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione

    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (
    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60
    *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan

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