+ Reply to Thread
Page 1 of 2 1 2 LastLast
Results 1 to 10 of 14

Thread: Getting ready to pack...

  1. #1
    Isn't here nearly enough! Elizabeth is on a distinguished road Elizabeth's Avatar
    Join Date
    Aug 2007
    Location
    Anderson, Indiana
    Age
    32
    Posts
    3,423
    Rep Power
    32

    Default Getting ready to pack...

    I am getting ready to pack for the hospital and have a few questions for those of you who have made it to the other side...

    1) What is the one thing you couldn't have lived without at the hospital?

    2) What is the one thing you took with you but didn't need?

    3) What is the one thing you wish most you would have thought to take with you?

    Thanks so much for all your help and encouragement over the past few months!!
    Elizabeth

    Hannah 7/05
    Isaac 7/07 bicoronal, sagittal, and right lamboid synostosis anterior CVR 1/9/08...posterior CVR 5/9/08...Tear duct probe/cleaning 2/19/09...Ear tube placement 4/6/09...Tonsillectomy 10/15/10...Full CVR scheduled for 6/29/11
    Jeremiah 2/26/10


    www.friendsofisaac.org

  2. #2
    Lacey & Emma's Mommy EmmaLacey will become famous soon enough EmmaLacey's Avatar
    Join Date
    Nov 2007
    Location
    Connecticut
    Age
    40
    Posts
    2,116
    Rep Power
    24

    Default

    I couldn't have lived without my own pillow!

    I took too many clothes for myself. I thought I would change every day but i didn't. I brought one pair of sweat pants and a couple pair of jeans, but I wore the sweats every day (and night - eww!). When you are mostly just sitting around in the room you just want to be comfortable.

    I can't think of anything that I wished I had brought that I didn't.
    Nancy
    Proud Mother to
    Lacey (8/18-2004)
    Emma (5/10-2007) Sagittal Surgery/and metopic - Dec 13, 2007
    CT Children's Medical Center - Dr Paul Kanev

  3. #3
    Cathy xl1200c is just starting out xl1200c's Avatar
    Join Date
    Jul 2007
    Location
    Massachusetts
    Posts
    876
    Rep Power
    19

    Default

    I packed alot of warm clothes, but it was super hot in the hospital rooms - so I wished I had packed clothes I could layer better.

    A good thing for us to have was David's music. We brought CDs from home of his children's music, plus tracks of his sister reading to him. It really helped calm him down when he couldn't see.

    Adult medicines were good to have too. I packed my own tylenol, pepto, that kind of stuff, to keep us feeling as well as possible.

    I packed way too much of everything.
    Last edited by xl1200c; 01-07-2008 at 10:42 AM.
    Cathy

    Wife to Jason, Mommy to Abigail 12-2004 & David 03-2007 (Metopic)

    CVR/FOA completed 12/12/07 at Children's Hosp. Boston
    Our Story: http://www.craniokids.org/support/showthread.php?t=2139
    Confessions of a post-op mom: http://www.craniokids.org/support/showthread.php?t=6316





  4. #4
    Fan of Dr. Fearon and crew Christina's_Mommy is just starting out Christina's_Mommy's Avatar
    Join Date
    Aug 2007
    Location
    Fort Smith, Arkansas
    Age
    30
    Posts
    1,828
    Blog Entries
    1
    Rep Power
    23

    Default

    Speaking of that, Christina has a glow worm that she goes to bed with. Would they let her have something like that while she is in the hospital?
    Carol

    Mom to Christina - 4 yrs
    http://www.caringbridge.org/visit/little_christina Our Story

    Bifrontal/Biparietal CVR/FOA Feb 27th 08 for Bicoronal. (Fearon,Swift), Developmental Delays, Hearing Loss, Narrowed Brain Ventricles, Moderate Asthma, Acid Reflux & Migraines. ICP monitor April 27th with Dr. Swift - Has borderline ICP. Follow up with Swift 9-12-11, Again 3-7-12. surgery #2 in about a year... EEG done 1-17-12 for headaches.


  5. #5
    Cathy xl1200c is just starting out xl1200c's Avatar
    Join Date
    Jul 2007
    Location
    Massachusetts
    Posts
    876
    Rep Power
    19

    Default

    David was allowed to have his toys, they even took his blanket to the operating room so they could have it to put on him as soon as they were done.
    Cathy

    Wife to Jason, Mommy to Abigail 12-2004 & David 03-2007 (Metopic)

    CVR/FOA completed 12/12/07 at Children's Hosp. Boston
    Our Story: http://www.craniokids.org/support/showthread.php?t=2139
    Confessions of a post-op mom: http://www.craniokids.org/support/showthread.php?t=6316





  6. #6
    Registered User Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet's Avatar
    Join Date
    Mar 2007
    Location
    Mississauga, Ontario, Canada
    Age
    39
    Posts
    20,403
    Blog Entries
    3
    Rep Power
    123

    Default

    I went out and bought a lot of cheap t-shirts from walmart. I brought a 12 pack of water (we had a fridge in the room), cans of soup, your own PILLOW, I brought a book...did not read a page. Fiona's hospital bed was filled with her toys. The one thing that I'm soooo gald I brought was Fiona's music thingy that's in her crib...it made her so much more calm. Bring slippers too or flip flops.
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips


  7. #7
    sky16cb is just starting out
    Join Date
    Nov 2007
    Location
    Rochester, New York
    Age
    29
    Posts
    142
    Rep Power
    14

    Default

    I could not live without my pillow. There are nice, but to me they were really hard...
    The one thing I didn't need to bring was diapers for her.

    I wish i would have brought my heating pad. After sitting in those chairs in the waiting room I need some heat to help my back... Oh and for m I live on caffine. And the coffe shop closed at like 8 pm. SO I had some redbulls hide away for that pick me up that I needed.
    Mom to Autumn Marie born July 30 2007 9 pounds 1 oz
    Saggital suture surgery Nov.1 2007


    BEFORE
    AFTER
    3 weeks post-op

  8. #8
    Bye-bye bi-coronal Abby'sMom is just starting out Abby'sMom's Avatar
    Join Date
    Dec 2007
    Location
    Cape Codder turned SW Floridian
    Age
    44
    Posts
    787
    Rep Power
    17

    Default

    I couldn't have made it without my boppy pillow! Once you are able to hold your little one again you won't want to put him down for long periods of time. The boppy allowed me to hold Abby against me not just when she was nursing but also while she was sleeping without my arms getting tired or falling asleep.

    I wish I had packed some chapstick because the room was a little dry but I had lanolin in my diaper bag so it wasn't that bad. A lot of little "comforts" will be available at the hospital if you forget something either in the gift shop or from the nurses. Don't be afraid to ask if you need something.

    I really overpacked but I had a "better to have it and not need it" attitude. I didn't think to bring relaxing music but that would have been nice if I thought of it!

    I remember the packing process...getting organized helped me feel somewhat in control but with all my nervous energy I seemed to have a hard time making some small decisions. If you find yourself stressing over whether to bring Isaac home in his blue sleeper or his green one pack them both!
    Mandy,
    Mommy of two gifts from above...
    "Abigail Hope" born 10/23/2007 (bi-coronal)
    and "Julianna Grace" (no cranio) born 5/27/2005
    *Abby had endoscopic surgery on Dec. 26, 2007 at Children's Hospital in Boston.
    [FONT=Palatino Linotype][SIZE=3][COLOR=#008080][COLOR=darkorange]

  9. #9
    Gavin's Mom sarahob is just starting out sarahob's Avatar
    Join Date
    Sep 2007
    Location
    Ontario, Canada
    Posts
    627
    Rep Power
    17

    Default

    I had brought some toys that Gavin was really familiar with and that he would play with and would enjoy while his eyes were swollen shut. I had these little shakers and some links that he could shake around. The other thing that I found useful were his button up little undershirts. He had a fever for the days that followed the surgery but it was nice to put one of his own little shirts on and I didn't have to worry about pulling anything over his head. I also brought my own pillow and one of my own blankets (I'm always cold).
    Mom to
    Gavin (4 years - total CVR for saggital cranio, October 24, 2007)
    Blake (6 - no cranio) and Mischa (2 - no cranio)

    Ontario, Canada

  10. #10
    jenniferann75 is just starting out jenniferann75's Avatar
    Join Date
    Jun 2007
    Location
    Indiana
    Age
    38
    Posts
    612
    Rep Power
    18

    Default

    just to ditto everyone else....I couldn't have lived without my own pillow. I brought books and magazines and never touched them. We borrowed a laptop from a friend and that was nice to have. The only place I found it to work at Riley's was the lobby and surgery waiting. We brought waters, pop, snacks and all of that - a lifesaver when you're hungry but don't want to leave.
    Jen ----> My Blog
    Mom to 5 precious boys
    Jim (16)
    Steven (14)
    Nick (10)
    Josh (7)
    Andrew (2)
    Sagittal Craniosynostosis, modified strip craniectomy 7/6/07



+ Reply to Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts