Now Clara is going to be 9 years old on Saturday (!). She is in third grade and doing well. Her motor skills are still below average. Her handwriting isn't great and she still has trouble with buttons, snaps, etc. But she is a great reader and speller, she has a great sense of humor and she's very charming :).
Of course, none of us have crystal balls. So at times I would really worry about how Clara was doing developmentally. Is Darienne getting early intervention services? Any child from birth to age three can get a developmental evaluation for services. Clara had physical therapy and speech from early intervention.
I think it's good that you first see your beautiful baby. Has she already had cranio surgery? She is very young and you won't know what her delays will be or even if she will have delays. If you haven't already, I would get her evaluated by early intervention for peace of mind. And SCS kids often have eye issues, so I would also recommend that she see a pediatric ophthalmologist. I have heard very good things about CHOP so I'm sure she is in good hands. But mainly, enjoy your new baby :)