Finally, we have a date September 8, Asger will go through his first cranial surgery. I look enormously forward to it's over.
it's so hard, this whole case with Asger. it's the first I think about in the morning, and the last thing I think about before I fall asleep.
And when I wake up in the middle of the night, because asger is crying and whimpering half asleep, it makes me sad, knowing that he has had to struggle with this for 5 years. without us having known what was wrong with him.
But thankfully we can soon see an end to it all. how should I prepare myself and my family to this.
how much do he need to understand when he is 5 years old and must go through such an operation. he needs to understand some of it , but at the same time he should not be afraid therefore I have been trying to find a way to explain, for him, why he must go through surgery.
And it is hard to find the right approach.
Therefore I have tried to explain to him what the problem is, and why there is a need for surgery.
I told him that if his shoes were to small, his feet would be in pain. and it would not be good for his feet, so he gets some bigger shoes so his feet will not bee in pain, and the feet will have room to grow. I sat it was the same with the brain it has the skull which must also grow, so that the brain is not squeezed. and if it can not grow the surgeon helps make the skull bigger. so there is room for the brain to grow in.
I told that he could not feel it, but that he would get a scar from ear to ear. and would be given medication so that it would not be painful. and he would not be able to see for a few days, his uncle is blind, so it's not something that scare him. I have said that he can listen and touch things and that we will be there and talk to him. and after the explanation, he was ok.
and I thought he had understood enough. but he's just a small child, and also a dreamer. A few days after. he said to me, will i also get new feets, or can we just buy some new shoes. : )
so we will just take it as it comes, and help him through this. He is a fantastic boy and I am sure he will handle it well.
Thanks again to all you wonderful parent. who help us through the last 8 months .
Please send good thoughts to Asger September 8 when he goes through surgery here in Denmark