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Thread: Importance of Taking Your Cranio Kid to the Eye Doctor

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    On the other side again! jjmc123 is just starting out jjmc123's Avatar
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    Default Importance of Taking Your Cranio Kid to the Eye Doctor

    You hear all the time about the importance of routine pediatrician checkups and taking your child to the dentist, but you rarely hear about the importance of eye exams, particularly for cranio kids. Cranio kids are at a much higher risk for eye issues and, if caught early, can be treated.

    Here is the recommendation from the American Optometric Association (AOA): infants should have their first comprehensive eye exam at 6 months of age. Children then should have additional eye exams at age 3, and just before they enter the first grade — at about age 5 or 6.

    Here is a list of dr that give FREE exams for babies under 1 year old: www.infantsee.org

    I also suggest, for children that are old enough to communicate, have them close one eye at a time and ask them if things look fuzzy. I never thought to ask Logan this simple question before, but when we found out about his eye issue he told us he knew he couldn't see out of his right eye, it's always been that way.

    I was brought up that you only did the vision test at school & only if you failed that did you go to an eye doctor. Logan had an eye exam at 4 months old. His eyes tracked great and the ophthalmologist said his eyesight was good. Over the past 4 years Logan has shown no problems with his vision. Both eyes track great, he can read letters from far away, doesn't trip over things, never complains about headaches, etc. He even PASSED the vision screening test at the pediatrician's office. At age 4.5 I took him for a routine eye exam and discovered he has very low vision in his right eye, it's 20/500. If I had taken him earlier, we could have caught it before it got this bad.

    I'm not posting this to scare anyone, I just want you to learn from my mistakes. If you catch eye issues early in children then you have an opportunity to reverse the damage or prevent the vision from getting worse.

    That is the end of my PSA
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione

    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (
    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60
    *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan

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    Bayoudancer Bayoudancer's Avatar
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    I am very glad that you posted this because I did NOT know that cranio kids have an increase risk for eye problems.... None of the drs I saw pointed this out!
    ~Kathleen~
    * Gage- No Cranio
    * Levi- Sagittal Cranio
    -Diagnosed 07-13-11
    Surgery with Dr. Fearon and Dr. Sacco November 29th at Medical City, Dallas!

    https://sites.google.com/site/leviscranio

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    lovin' my lambdoid cutie boy! evergreenmom will become famous soon enough evergreenmom's Avatar
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    Cindy-

    I am so glad you posted this and I hope it can be made into a sticky so that it is always at the forefront of the information new parents get from this site. Children with cranio in particular should be taken for regular vision checks as well as a simple check that Pediatric Ophthalmologists can do for Papilledema which is optic disc swelling that is secondary to elevated intracranial pressure. I am not sure why Craniofacial teams don't all recommend regular vision checks for these kiddo's- they obviously should!

    I am so sorry for Logan's vision issue but I know what a smart strong capable little guy he is and I am sure he will do just great in any event! Thanks for sharing your story with us...
    Kristin, Momma of two rambunctious cuties:
    Lucy born 3/05 "failure to thrive"- negative percentile on growth chart for weight 3/06 to 3/08
    Xander born 3/08 Left Lambdoid Synostosis and Chiari Malformation- Posterior CVR Surgery 2/09 w/ Dr Fearon and Dr Sacco at Medical City Hospital Dallas, TX (fought insurance and won in network gap exception) rant rant rant....

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    On the other side again! jjmc123 is just starting out jjmc123's Avatar
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    The pediatric ophthalmologist we went to did a stint at CHOP and worked on their cranial facial team. He was so mad that no one told us to bring Logan in earlier. He said that the prevalence of eye issues in cranio kids is huge. It takes 30 min out of your day to get your kid checked out. If there is an issue, you can catch it & fix it. If the eyes are fine, then you get some peace of mind.
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione

    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (
    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60
    *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan

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    Jude'sMummy Jude'sMummy's Avatar
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    Yep Jude is only 8 months and has been given glasses already. They said that I he doesn't start Wearin them now that his vision in his good eye will deteriorate to the level of that in his bad eye but the glasses will prevent this.
    ZowieMum to Holly - 9th august 07 - no Cranio Jude - 23rd november 10 (6weeks prem) - metopic cranio with trigonacephaly but wouldn't swap him for the world!!! - Surgery 23/1/2012- The amazing Alder Hey (FOA/CVR) WE ARE ON THE OTHER SIDE!!!!!!! Isla - 15 June 12 - no cranio

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    Bayoudancer Bayoudancer's Avatar
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    Levi is 5 months now... when should I schedule him an appt?
    ~Kathleen~
    * Gage- No Cranio
    * Levi- Sagittal Cranio
    -Diagnosed 07-13-11
    Surgery with Dr. Fearon and Dr. Sacco November 29th at Medical City, Dallas!

    https://sites.google.com/site/leviscranio

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    Jude'sMummy Jude'sMummy's Avatar
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    Our ophthalmologist said 6 months was best but don't know what other people have been told?
    ZowieMum to Holly - 9th august 07 - no Cranio Jude - 23rd november 10 (6weeks prem) - metopic cranio with trigonacephaly but wouldn't swap him for the world!!! - Surgery 23/1/2012- The amazing Alder Hey (FOA/CVR) WE ARE ON THE OTHER SIDE!!!!!!! Isla - 15 June 12 - no cranio

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    Nezzy will become famous soon enough Nezzy's Avatar
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    Is for ALL cranio or just coronal? I was not told Nick needed any eye checks.
    Heather
    Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
    http://www.caringbridge.org/visit/NicholasNezich
    http://www.onetruemedia.com/shared?p...3242&skin_id=0

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    On the other side again! jjmc123 is just starting out jjmc123's Avatar
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    Quote Originally Posted by Nezzy View Post
    Is for ALL cranio or just coronal? I was not told Nick needed any eye checks.
    Not sure. Coronal definitely appear to have the biggest issue with eyes since the closure affects the eye sockets, but I would think any kid with cranio should be checked since all types can affect the eyes somewhat, though I would think saggital the least of them all (in my non-doctor opinion).
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione

    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (
    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60
    *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan

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    Jude'sMummy Jude'sMummy's Avatar
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    Quote Originally Posted by Nezzy View Post
    Is for ALL cranio or just coronal? I was not told Nick needed any eye checks.
    Jude is metopic and is near sighted with astigmatism in both eyes although his right his far worse than his left.
    ZowieMum to Holly - 9th august 07 - no Cranio Jude - 23rd november 10 (6weeks prem) - metopic cranio with trigonacephaly but wouldn't swap him for the world!!! - Surgery 23/1/2012- The amazing Alder Hey (FOA/CVR) WE ARE ON THE OTHER SIDE!!!!!!! Isla - 15 June 12 - no cranio

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