Lennon was seen by a genetic counselor and had a simple genetics test done about a year ago (after her cranio surgery) and we were told they couldn't find anything and it was dropped.
I recently changed hospitals (to Loma Linda) and these doctors are SOOO much better, proacive and seem to honestly care about my children! Anyhow, they took one look at Lennon and insisted that she have more in-depth testing done as they are almost positive that she has a genetic condition. Right now they beleive she has Kabuki Syndrome.
Kabuki is super rare (only 1 in 32,000+ births) so I am having a really hard time finding any info at all. SO I thought I would put it up here just in case anyone else is in the same boat one day.
Also, the cranio does not appear to be related to the Kabuki Syndrome but they're not sure since there are so few cases of it to compare to.