Great job admins! The site looks great!!! At first I thought I typed in the wrong adress as it looks so different![]()
Great job admins! The site looks great!!! At first I thought I typed in the wrong adress as it looks so different![]()
Cindy
Mom to Logan (12/8/2006) - Left Coronal
Hospital - Connecticut Children's Medical Center (CCMC)
Surgeons - Dr. Kanev & Dr. Casteglione
1st Surgery (7/21/2007) - CVR & ear tubes
2nd Surgery (2/18/2011) - CVR #2
Patch therapy for amblyopia (lazy eye)
8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60*** 8/6/12 - 20/50
http://www.caringbridge.org/visit/logansullivan
Wow, this is different. It'll take me a while to get used to it, but it looks great!
Proud Mommy to
Caleb -17
Ethan -13
Joanna -11
Olivia -9
Isaac -5-Metopic Cranio, no surgery;Chiari Malformation and Posterior Fossa Cyst, surgery 4/1/08 & 12/03/08; Pseudomeningocele and CSF leak, surgery 12/18/08; Multiple congenital Heart Defects, Autism, Multiple Birth Defects
http://www.caringbridge.org/visit/i.m.lucky
This is awesome!
Aisha
03/30/07-Jeremiah (multiple medical issues and delays)
Posterior CVR 03/31/11 (4yrs old)
Dr. Rhodes CFS and Dr. Gary Tye NS @ VCU Medical Center
Bilateral fronto-orbital advancement 01/10/13 (5 1/2yrs old)
Dr. Bartlett CFS and Dr. Storm NS @ CHOP
www.caringbridge.org/visit/jeremiah2007
http://craniocarebears.org/2013/jeremiah-sagittal/
We are on the other side again!
Where is the list of amileys for posting? if I know the short cuts they show up.![]()
Cindy
Mom to Logan (12/8/2006) - Left Coronal
Hospital - Connecticut Children's Medical Center (CCMC)
Surgeons - Dr. Kanev & Dr. Casteglione
1st Surgery (7/21/2007) - CVR & ear tubes
2nd Surgery (2/18/2011) - CVR #2
Patch therapy for amblyopia (lazy eye)
8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60*** 8/6/12 - 20/50
http://www.caringbridge.org/visit/logansullivan
It's not done yet.
The upgrade was done but the colors and formatting wasn't compatible. Katie's going to work on getting it to be pretty again. Since I have no idea what I'm talking about, I will leave it at that.![]()
Lauren
Mom to Matthew (sagittal, surgery 11/9/01 at NEMC in Boston) and Danny![]()
Yikes - it does look different! goona go have a good look around!!!
Chloe,
Mum to 3 beautiful children-
Aaron 12/2/02
Joey 5/3/06
Zara 16/12/07 our little princess-right unicoronal. Surgery 29th April 2009. Great Ormond Street Hospital
Zara's craniofacial journey http://www.youtube.com/watch?v=DtNbSmC8LNU
Thought I had been directed to the wrong site! I like the new look but bring back the pink :)
Sam...
Proud mummy to A born 12/2009.
Diagnosed at 4 weeks with Metopic Suture Synotosis with Trigonocephaly.
My very brave and gorgeous boy!
Cindy - You can click the smiley button on the top bar for the quick edit or click the More link on the right hand side in advanced mode for a list of all of them.
Tammy
Jesse's Mommy (2/18/11) - Moderate/Severe Metopic w/Trig
Aug 23, 2011 - CVR/FOA #1
Aug 29, 2012 - CVR/FOA #2 (Dr. Fearon & Dr. Sacco)
We are on the other side AGAIN!!!
Jesse's Cranio Journey
Cindy
Mom to Logan (12/8/2006) - Left Coronal
Hospital - Connecticut Children's Medical Center (CCMC)
Surgeons - Dr. Kanev & Dr. Casteglione
1st Surgery (7/21/2007) - CVR & ear tubes
2nd Surgery (2/18/2011) - CVR #2
Patch therapy for amblyopia (lazy eye)
8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60*** 8/6/12 - 20/50
http://www.caringbridge.org/visit/logansullivan
Great job!! Is definetley gonnna take time to get used to the new site!! So please tell me just in case I can't seeit yet, aside from the design in general and the new Blog option
!! Is there anything new we should know about!! It would probably take me forever to search around to find it!![]()
Carmen
Mother of 2 Girls, 4 Boys!
Mateo Tolentino 10/21/09
Dx - 07/08/10 Sagittal Synostosis Surgery Date: 08/23/10
Dr Singh (CFS) Dr Shafron (NS)
We are on the other side
Lucas Jeremiah 11/25/10
Dx - 03/31/11 Plagio/TorticollisHelmet Therapy 06/03/11
Dx - 07/20/11 Mild Metopic W/Trig (wait and see)