Surgery in two weeks for my 6 yr. old
I haven't posted for awhile, but Ethan, who is now six and a half, will be having surgery on July 21st, for saggital, at Children's Hospital in St. Louis with Drs. Smyth & Woo. Of course, I am scared and concerned, so any encouragement anyone can give me would be soooo appreciated right now. Blessings to all you moms, dads, and incredible kids.
Good luck you & Ethan! The older kids seem to do soooo well with this surgery. Hoping this is the case for Ethan!
Kristin, Chronic Lyme Disease
Big Sister Bear 9/2005
Little Brother Monkey 6/2009, Metopic Cranio dx at 12 mos, CVR/FOA at 20 mos.Drs. Martin and Castiglione, Connecticut Children's Medical Center (Autism Spectrum Disorder)
Monkey's Blog: http://www.MetopicMonkey.blogspot.com
Best of luck to you. I will be thinking of you all.
Good luck! Everything will be fine! The kids do well. We have some parents with older children that do really great and can vocalize their discomforts which seem to be close to none. Keep us updated!
Claire
Proud mommy to Raphael - 07/24/10
Sagittal Synostosis Surgery - 05/24/11
Dell Children's Hospital Austin, TX - Dr. Kelley/Dr. George
Raphael's story: http://www.craniokids.org/support/sh...257#post292257
We are on the other side!
Ethan will do great! I am sending you positive thoughts and prayers for his upcoming surgery.
Aisha
03/30/07-Jeremiah (multiple medical issues and delays)
Posterior CVR 03/31/11 (4yrs old)
Dr. Rhodes CFS and Dr. Gary Tye NS @ VCU Medical Center
Bilateral fronto-orbital advancement 01/10/13 (5 1/2yrs old)
Dr. Bartlett CFS and Dr. Storm NS @ CHOP
www.caringbridge.org/visit/jeremiah2007
http://craniocarebears.org/2013/jeremiah-sagittal/
We are on the other side again!
Good luck!! Have you requested a care package yet? Please go to www.craniocarebears.org
Were here for you and Ethan will be in my prayers!!
~~Shelby~~
AJ~Sagittal Craniosynostosis
~Surgery 10-6-2009 At Seattle Children's Hospital
~Dr. Ojemann and Dr. Gruss~
Cranio Care Bears
www.craniocarebears.org
Good luck!
Carmen
Mother of 2 Girls, 4 Boys!
Mateo Tolentino 10/21/09
Dx - 07/08/10 Sagittal Synostosis Surgery Date: 08/23/10
Dr Singh (CFS) Dr Shafron (NS)
We are on the other side
Lucas Jeremiah 11/25/10
Dx - 03/31/11 Plagio/TorticollisHelmet Therapy 06/03/11
Dx - 07/20/11 Mild Metopic W/Trig (wait and see)
Good luck! My son was 4 for his 2nd surgery. The worrying I felt prep was worse than the surgery itself. It really helps that the older kids can verbalize how they are feeling/pain they are in. My son refused pain meds, he said he felt no pain. He was his normal self within a couple days. Until then, we just let let him watch TV & play video games. He was very content.
Cindy
Mom to Logan (12/8/2006) - Left Coronal
Hospital - Connecticut Children's Medical Center (CCMC)
Surgeons - Dr. Kanev & Dr. Casteglione
1st Surgery (7/21/2007) - CVR & ear tubes
2nd Surgery (2/18/2011) - CVR #2
Patch therapy for amblyopia (lazy eye)
8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60*** 8/6/12 - 20/50
http://www.caringbridge.org/visit/logansullivan
Good luck, Ethan will do great!
Mary
First time mummy to Zoe (07/06/10) - Sagittal Cranio
Surgery - 8 June 2011 at Royal Children's Hospital, Melbourne Australia
We are on the other side
Best wishes and many prayers for you and Ethan. I imagine it's scary (for you and him) to go thru this at his age, but as someone mentioned, the older kids do great with surgery as well. Hang in there mama :)
Julie
mom of two boys
Zachary Joseph Marquez 9/4/02 - no cranio
Alexander Michael Marquez 9/2/08 - metopic cranio
surgery 5/15/09 with Dr. Fearon & Dr. Sacco
http://www.caringbridge.org/visit/alexmarquez
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