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Thread: Update: One month post-op!

  1. 06-17-2011 07:28 PM #1
    gijohnnysgal
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    Talking Update: One month post-op!

    Henry is one-month post-op today! All in all, this month has been GREAT! It's amazing how good life is when surgery is behind you! We haven't had any sleeping or mood issues, nor have we had issues with the incision. Our two-week post-op appointment with the CFS was great, and we're free until November!

    H had his four-month well-baby visit yesterday, and he now weighs 16 lbs. 8 oz. He rolled from his back to his stomach yesterday and then back to his back too...just in time to update the pediatrician. We're going to start some homemade solids this weekend (avocado puree!), and we're working on using our exersaucer and walk around. He is amazing!

    Henry 6/16/11- 4 months, 3 days old!


    The incision 6/17/11- one month post-op!


    Abby, mom to Henry...2/13/11...metopic and sagittal cranio...CVR 5/17/11 at 13w 2d...Vanderbilt Children's Hospital with Drs. Kelly and Tulipan.

    ...thanking God we are on the other side!!!!
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  2. 06-17-2011 07:42 PM #2
    Janet
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    He looks amazing!! I'm glad he was good with sleeping.
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

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  3. 06-17-2011 07:45 PM #3
    jjmc123
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    he looks great!!!
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione
    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60     *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan
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  4. 06-17-2011 08:08 PM #4
    rashleigh
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    he looks really good :) caleb has those same pj's!!! monkeys are his favourite so we had the pattern from those sleepers painted onto his helmet
    carolynn mom of 4 boys
    christian, 11, no cranio
    justin, 6, sagittal, CVR april 13, 2006 Sick kids, toronto
    lucas, 3, sagittal, CVR, jan 23, 2008 Sick kids, toronto
    caleb, 11 mos, mild metopic and mild sagittal CVR
    may 17, 2011 Sick kids, toronto
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  5. 06-17-2011 08:36 PM #5
    Zoe's Mummy
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    Wow he looks amazing!! I'm glad he's doing so well.
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  6. 06-17-2011 08:50 PM #6
    AJ's Mommy
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    He is SO cute!!!!
    ~~Shelby~~

    AJ~Sagittal Craniosynostosis
    ~Surgery 10-6-2009 At Seattle Children's Hospital
    ~Dr. Ojemann and Dr. Gruss~

    Cranio Care Bears
    www.craniocarebears.org
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  7. 06-17-2011 11:29 PM #7
    Carmen77
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    He looks great!!
    Carmen
    Mother of 2 Girls, 4 Boys!
    Mateo Tolentino 10/21/09
    Dx - 07/08/10 Sagittal Synostosis Surgery Date: 08/23/10
    Dr Singh (CFS) Dr Shafron (NS)
    We are on the other side
    Lucas Jeremiah 11/25/10
    Dx - 03/31/11 Plagio/TorticollisHelmet Therapy 06/03/11
    Dx - 07/20/11 Mild Metopic W/Trig (wait and see)
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  8. 06-18-2011 06:21 AM #8
    SummerEhmann
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    He is adorable! Isn't the other side a great place?
    Mommy of
    Daughter: Braylee - 1/7/09 - No Cranio
    Son: Brentley - 6/28/10 - Originally misdiagnosed as Left Coronal Cranio and then diagnosed with Frontosphenoidal Synostosis (one of 6 in the entire world!!) - CVR surgery on 12/21/10 at Children's Hospital in Denver, Co with Dr. Winston & Dr. Ketch

    Read more about our story here
    http://craniokids.wordpress.com/

    WE'RE ON THE OTHER SIDE!!!!! Now mentor and send loving care packages to families going through it!
    www.CranioCareBears.org

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  9. 06-18-2011 07:32 AM #9
    Monkey'sMommy
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    He looks wonderful! The incision looks like it is healing so nicely, too. Way to go, Henry!
    Kristin, Chronic Lyme Disease
    Big Sister Bear 9/2005
    Little Brother Monkey 6/2009, Metopic Cranio dx at 12 mos, CVR/FOA at 20 mos.Drs. Martin and Castiglione, Connecticut Children's Medical Center (Autism Spectrum Disorder)
    Monkey's Blog: http://www.MetopicMonkey.blogspot.com
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  10. 06-18-2011 09:42 AM #10
    *Jessica*
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    Yay!!! Good to hear he's been doing so well! He is a DOLL!
    Jessica
    Jeffrey James    Metopic, Surgery June 2009, Vanderbilt
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