Best of luck with surgery (June 15th)....I really hope that Nicolas has a speedy recovery.
Good Luck Nicolas (Mel-Nic)
Best of luck with surgery (June 15th)....I really hope that Nicolas has a speedy recovery.
Mom to Noah (no cranio)
Fiona (Metopic):
Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips
Sending prayers!! Good luck tomorrow!!
Carmen
Mother of 2 Girls, 4 Boys!
Mateo Tolentino 10/21/09
Dx - 07/08/10 Sagittal Synostosis Surgery Date: 08/23/10
Dr Singh (CFS) Dr Shafron (NS)
We are on the other side
Lucas Jeremiah 11/25/10
Dx - 03/31/11 Plagio/TorticollisHelmet Therapy 06/03/11
Dx - 07/20/11 Mild Metopic W/Trig (wait and see)
best wishes!
Cindy
Mom to Logan (12/8/2006) - Left Coronal
Hospital - Connecticut Children's Medical Center (CCMC)
Surgeons - Dr. Kanev & Dr. Casteglione
1st Surgery (7/21/2007) - CVR & ear tubes
2nd Surgery (2/18/2011) - CVR #2
Patch therapy for amblyopia (lazy eye)
8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60*** 8/6/12 - 20/50
http://www.caringbridge.org/visit/logansullivan
I will be praying for an easy and uneventful surgery! Can't wait to hear that you are on the other side!
Jessica
Praying for Nicholas!!!
~~Shelby~~
AJ~Sagittal Craniosynostosis
~Surgery 10-6-2009 At Seattle Children's Hospital
~Dr. Ojemann and Dr. Gruss~
Cranio Care Bears
www.craniocarebears.org
Good luck! Hope all goes well and that recovery is speedy!
Claire
Proud mommy to Raphael - 07/24/10
Sagittal Synostosis Surgery - 05/24/11
Dell Children's Hospital Austin, TX - Dr. Kelley/Dr. George
Raphael's story: http://www.craniokids.org/support/sh...257#post292257
We are on the other side!
Praying and thinking of you. You'll be strong and so will Nicolas.
Heather
Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
http://www.caringbridge.org/visit/NicholasNezich
http://www.onetruemedia.com/shared?p...3242&skin_id=0
Thank you so much, everyone, for your well wishes. You are truly a wonderful community and I feel very supported by your kind words. I am anxious, but less so than I expected. The 2 month delay since the first surgery was postponed has helped me deal with all of this craziness and come to terms with it a little better. I have some peace that all will be well tomorrow, but still will hold my breath until Nicolas' surgeons come out to tell us he is OK. I dread handing him over in the morning, and cannot wait for his new beginning after surgery.
Will send an update as soon as I can. Thanks again!!!!!
Lara
Thinking of you! All the best for a smooth and speedy recovery.
Handing over your child is the hardest thing in the world and the waiting is agonizing but it really is worth it in the end.
Nicolas will do so well, he will amaze you!
Keep us updated when you can.
Best wishes and praying for a great recovery!
Aisha
03/30/07-Jeremiah (multiple medical issues and delays)
Posterior CVR 03/31/11 (4yrs old)
Dr. Rhodes CFS and Dr. Gary Tye NS @ VCU Medical Center
Bilateral fronto-orbital advancement 01/10/13 (5 1/2yrs old)
Dr. Bartlett CFS and Dr. Storm NS @ CHOP
www.caringbridge.org/visit/jeremiah2007
We are on the other side again!
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