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Thread: Have any adults actually had their cranio treated?

  1. #1
    Hi!IamJay:)
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    Default Have any adults actually had their cranio treated?

    Sorry, if that's a stupid question...

    I'm just interested to know if any cranio adults that have been on here have had their problem resolved at all by a surgeon or whatever.

    Also, another question, does being a cranio adult mean you'll face health risks like cranial pressure or anything like that?

    again sorry if this is a pointless thread

  2. #2
    Raffi's Mommy InfinityRogue InfinityRogue's Avatar
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    Hi! I'm a sagittal mommy. I'm not sure if I welcomed you yet, so Welcome! First off, there are no stupid questions or pointless threads. We are here to help you and support you, so please don't feel afraid to ask. Second, unfortunately I don't know much about adults with cranio. My daughter is 10 months old. I believe Monty (is his name I think), is quite the expert and has done a lot of research on this. I'm sure he'll chime in once he sees this thread. I hope you find your answers. Good luck!
    Claire
    Proud mommy to Raphael - 07/24/10
    Sagittal Synostosis Surgery - 05/24/11
    Dell Children's Hospital Austin, TX - Dr. Kelley/Dr. George


    Raphael's story: http://www.craniokids.org/support/sh...257#post292257
    We are on the other side!

  3. #3
    andrews mommy will become famous soon enough andrews mommy's Avatar
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    I remember 1 adult just cant think of his name, monty should know. He's had many surgerys as an adult if i remember correctly. And there is no stupid questions ;)
    Erika- mommy to victoria-10 no cranio,vincent-7 no cranio,daniel-6 no cranio,destiny- 4 no cranio,mikey- 2 no cranio,andrew- 12-10-09 bi-coronal surgery 10-12-10, anthony-no cranio

  4. #4
    KD'sMommy JIC0930 JIC0930's Avatar
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    Welcome to CK. I don't know of any adults who have had surgery, but the surgeon we consulted did say he works on patients of all ages including adults. There are no stupid questions. :)
    Janice mommy to Kadence 10-30-09 metopic craniosynostosis/ mild trigonocephaly -No Surgery
    and Gavin 12-1-11 - no cranio

  5. #5
    uncorrected sagital synostosis monty is just starting out
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    I'm certainly NOT quite the expert at all but I have some experience of how the system appears to work for an adult newly diagnosed, at least here in then uk.

    I have had a small procedure where they drill a hole in ones head to plug in a monitoring device to assess intra cranial pressure. I have it. I will be having some surgery at some point, god knows when, I stopped anticipating emails and correspondence as it takes so long it's best to just get on with other things. very long process.

    Good luck
    I learned long ago, never to wrestle with a pig, you get dirty; and besides, the pig likes it.

    George Bernard Shaw

  6. #6
    Lars
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    Quote Originally Posted by andrews mommy View Post
    I remember 1 adult just cant think of his name, monty should know. He's had many surgerys as an adult if i remember correctly. And there is no stupid questions ;)
    That might be me. I've had a couple of "cosmetic" surgeries as an adult. These weren't what (I guess) would be described as corrective - those I had as an infant.

    Monty has been investigating more radical surgeries.

  7. #7
    Alex's mama *jules* is on a distinguished road *jules*'s Avatar
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    Hi and welcome :) You ask a very good question and we have several adults on the site wondering if surgery is an option for them. Monty and Lars already chimed in and hopefully some others will share their input and experience as well. Glad to have you aboard and I hope you find the answers you're looking for.
    Julie
    mom of two boys
    Zachary Joseph Marquez 9/4/02 - no cranio
    Alexander Michael Marquez 9/2/08 - metopic cranio
    surgery 5/15/09 with Dr. Fearon & Dr. Sacco

    http://www.caringbridge.org/visit/alexmarquez

  8. #8
    tux1982 is just starting out
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    there doesnt really seem to be a safe way of any kind of treatment for adults

  9. #9

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    I went to a surgeon to ask if there could be anything done, operation, implants, filling materials.
    Didnt get the answer i was looking for.
    They dont seem willing to do surgery on adults.
    Maybe fear of making mistakes? Anyway, I was out of there again, within 5minutes.

    I bet it would be different if we all were a majority, but we are not.

    Basically you need to be lucky to live in a country where surgeons exist, that are able to help you and are willing to help you.

    Either that or you need to have the money to travel.

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