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Thread: Still Waiting....

  1. #1
    Karasmommy is just starting out
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    Default Still Waiting....

    Kara had her MRI on Tuesday morning and we're still waiting. I called the dr.'s office yesterday and they have the report but he hadn't signed it so they couldn't tell me anything. We should hear today. The original diagnosis was the cerebral atrophy which if I had to choose one that is not the one I would pick. I'm nervous and scared and everything in between.

    On a lighter note, Kara rolled from her stomach to her back on Sunday, that was a first and very important milestone. She'll be 8 months in three days so I'm watching for every little thing :)

    I'll edit this once I hear from the doctors office.

    Leci
    Leci

    Mother to 4 beautiful daughters:

    Brianna - 6
    Kyla - 5
    Mikayla - 3 - Spastic Cerebral Palsy
    Kara - 7 1/2 months - Possible microcephaly or cerebral atrophy

  2. #2
    Isn't here nearly enough! Elizabeth is on a distinguished road Elizabeth's Avatar
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    I'm still praying for little Kara...we are all anxious along with you to hear the report!

    Elizabeth
    Elizabeth

    Hannah 7/05
    Isaac 7/07 bicoronal, sagittal, and right lamboid synostosis anterior CVR 1/9/08...posterior CVR 5/9/08...Tear duct probe/cleaning 2/19/09...Ear tube placement 4/6/09...Tonsillectomy 10/15/10...Full CVR scheduled for 6/29/11
    Jeremiah 2/26/10


    www.friendsofisaac.org

  3. #3
    melsch is just starting out melsch's Avatar
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    Leci, I can only imagine what you are going through and how nervous/scared you are. My thoughts and prayers are with you and your family!
    Melissa
    Mom to 2 beautiful angels!

    Kayla (8/99)
    Logan (7/07)
    Metopic sugery Nov. 7, 07'

    www.caringbridge.com/visit/loganschaefer

  4. #4
    Gavin's Mom sarahob is just starting out sarahob's Avatar
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    Great news on the rolling! Way to go Kara!
    Our thoughts and prayers continue to be with you. Please continue to keep us updated.
    Mom to
    Gavin (4 years - total CVR for saggital cranio, October 24, 2007)
    Blake (6 - no cranio) and Mischa (2 - no cranio)

    Ontario, Canada

  5. #5
    jenniferann75 is just starting out jenniferann75's Avatar
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    Yay Kara!!! I love when they hit those milestones. :)

    Leci, I will keep you in my thoughts and prayers today. I know how hard the waiting is. Hang in there. (((hugs)))
    Jen ----> My Blog
    Mom to 5 precious boys
    Jim (16)
    Steven (14)
    Nick (10)
    Josh (7)
    Andrew (2)
    Sagittal Craniosynostosis, modified strip craniectomy 7/6/07



  6. #6
    charliesmummy will become famous soon enough charliesmummy's Avatar
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    Well done little Kara on the rolling.
    I'll be keeping you all in my prayers, lets keep our fingers crossed that she doesnt have Cerebral Atrophy xx
    Jacqui - mummy to Charlie, Metopic cranio & Harry (no cranio)

    Surgery carried out on 6th Sep 2007
    CVR/FOA at John Radcliffe Hospital Oxford
    Surgeon - David Johnson

    Charlie's Metopic Journey - www.craniokids.org/support/showthread.php?t=16222

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