Lumpy and Bumpy
Was your child's head "perfectly round" after surgery or did it take time? Did he/she have some lumps and bumps? Ainsley seems to have some lumpy places that the doctor says is perfectly normal (as things shift). Did anyone else experience this?
Thanks!
Tara
Ainsley Jane 6/10/10 - sagittal cranio - surgery April 13, 2011
My daughter had a CVR for metopic....she is over 3.5 years post op and has lots of lumps and bumps on the top of her head.
Mom to Noah (no cranio)
Fiona (Metopic):
Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips
My son AJ is 18 months post op for Sagittal and he's totally lumpy and bumpy. They say it's normal.
~~Shelby~~
AJ~Sagittal Craniosynostosis
~Surgery 10-6-2009 At Seattle Children's Hospital
~Dr. Ojemann and Dr. Gruss~
Cranio Care Bears
www.craniocarebears.org
I don't think a sagittal kiddo will ever have a perfectly round head....as a sagittal mom, I'm very happy with oval! ;)
And lumpy/bumpy is definitely normal post-op!
Mom to CamdenSagittal Cranio Kid
Posterior CVR- Fearon/Swift
Anterior CVR/FOA- Genecov/Weprin
My son had lots of lumps & bumps after his 1st op
Cindy
Mom to Logan (12/8/2006) - Left Coronal
Hospital - Connecticut Children's Medical Center (CCMC)
Surgeons - Dr. Kanev & Dr. Casteglione
1st Surgery (7/21/2007) - CVR & ear tubes
2nd Surgery (2/18/2011) - CVR #2
Patch therapy for amblyopia (lazy eye)
8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60*** 8/6/12 - 20/50
http://www.caringbridge.org/visit/logansullivan
my kid is almost one year post op and she has a huge softspot and also lots of lumps and bumps...
Denise Mom of:
Alexa(jan/04/10) Right coronal CVR/ FOA (may/26/10)
Lots of lumps and bumps here after both surgeries. We were told he'll probably always be
Jenni mommy to 3 wonderful kiddos
Katelynn, Trent, and my cranio kid
Layne 10/21/08 Saggital(born) and Metopic(developed)
Pi procedure 02/20/2009,
Surgery #2 Total CVR Feb 16th, 2011
uh-oh here we go again....
We're lumpy and bumpy too. I don't mind them as much as her bulging new holes where I can see her pulse in the back and top of her head. Surgery was 4 months ago...
When the world says, "Give up," Hope whispers, "Try it one more time."
Lumps and bumps are normal. They lay down new bone faster in some areas.
Heather
Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
http://www.caringbridge.org/visit/NicholasNezich
http://www.onetruemedia.com/shared?p...3242&skin_id=0
How is Ainsley doing?
My son's head was nice and round right after surgery. As it started to grow, he developed a bump on top of his head. He also has several soft spots that didn't close. Surgery helps provide the brain with room to grow, but may times it results in a lumpy, bumpy skull.
Sagittal surgery - 02/26/2009
Second surgery suggested to correct a bump on the head and fill in soft spots.
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