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Thread: I googled & i'm a little upset..

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    andrews mommy will become famous soon enough andrews mommy's Avatar
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    Default I googled & i'm a little upset..

    I found exact matches of andrews feet..Bi-lateral Metatarsus Varus. So while its treatable with casts and/or surgery, no dr has caught it agreed there was something going on but he'd outgrow it...well yes its possible but not probable after 3 months! It's caused by confinement in utero. Weird that it affected both feet as did the cranio?? And i kept telling everyone he was stuck but i'm not educated enough to make that call. I'm super irritated by this so who do i go to now? I'm sorry i hate the idea of something else wrong.
    Erika- mommy to victoria-10 no cranio,vincent-7 no cranio,daniel-6 no cranio,destiny- 4 no cranio,mikey- 2 no cranio,andrew- 12-10-09 bi-coronal surgery 10-12-10, anthony-no cranio

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    Moderator Zara's mum will become famous soon enough Zara's mum's Avatar
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    I would go to your gp armed with print outs of feet like andrew and demand that he looks at them in front of you xx
    Chloe,



    Mum to 3 beautiful children-

    Aaron 12/2/02
    Joey 5/3/06
    Zara 16/12/07 our little princess-right unicoronal. Surgery 29th April 2009. Great Ormond Street Hospital

    Zara's craniofacial journey http://www.youtube.com/watch?v=DtNbSmC8LNU

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    Registered User Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet's Avatar
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    I googled like a crazy woman last night and I'm printing out some stuff to do with my son for our appt in May.

    I agree with Chloe....go in with your print outs. I had to do the same thing when I was trying to get Fiona diagnosed. Dr's don't know everything and I'm starting to figure that out pretty fast!
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips


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    KD'sMommy JIC0930 JIC0930's Avatar
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    I'm sorry your concerns are not being addressed. I agree with Chloe go to the Dr. armed with the info you found. I think it is crazy when Drs ignore complaints when your pregnant as if the child isnt growing inside you or something! He was your 6th pregnancy - of course you knew he was stuck! :) When I told the nurse at my OB check that KD was breech they told me I was crazy but I wasnt. You may not be a professional but you know your body and your baby best!
    Janice mommy to Kadence 10-30-09 metopic craniosynostosis/ mild trigonocephaly -No Surgery
    and Gavin 12-1-11 - no cranio

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    Mommy to my "Little Tonka" Carmen77 will become famous soon enough Carmen77's Avatar
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    I'm so sorry, agree with others take your info to your Dr. And tell them if they won't address it you will find someone who will! Good luck, and let us know what they say!
    Carmen
    Mother of 2 Girls, 4 Boys!
    Mateo Tolentino 10/21/09
    Dx - 07/08/10 Sagittal Synostosis Surgery Date: 08/23/10
    Dr Singh (CFS) Dr Shafron (NS)
    We are on the other side
    Lucas Jeremiah 11/25/10
    Dx - 03/31/11 Plagio/TorticollisHelmet Therapy 06/03/11
    Dx - 07/20/11 Mild Metopic W/Trig (wait and see)

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    tams tams's Avatar
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    My son had very curved in feet and bowed legs. He was seen by an orthopedic dr when he was about 18 mo. He was diagnosed with tibial torsion for his legs and the dr said his feet would straightn out with time. His feet have gotten much better. When he was smaller i would do gentle stretches a few times a day to straighten them out and put his shoes on the wrong feet around the house. Don't know if that helped or if it was just time. Hope you get the answers you need to ease your mind.
    Tammy mommy to
    Austin 4/16/93, Jordon 5/10/95, Jasmin 2/25/98, Caleb 1/5/99, Emmalee 10/14/02, Angelica 4/8/08,
    Jameson 7/26/08 positional plagio

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