New from Windsor

[krisrabideau]

Thank you all so much, sorry it took to long to post again but it has been crazy around her. All our London trips and Devon was baptized on Nov 20. She looked beautiful by the way. We have had our neurosurgeon appointment cancelled three times. We now have our appointment Dec 7, but no surgery booked yet. Jan is coming fast and I am worried they will not get her in before the plastic surgeons "best before" date. We really want this over and want our little angel to be as perfect after as she is now. This is so hard on the family, even the extended family. Grandma has a bad heart and she is always worried. I will say that this has really brought our family together. Well thanks again everyone and I look forward to talking to all of you again.:bouquet

[EmmaLacey]

Hello,
As everyone has said this site is wonderful. I am fairly new myself....my daughter is 6 months old and recently diagnosed with sagittal. Luckily for us we didn't have to wait so long for a surgery date. My daughter didn't even have to have a CT scan. We had our appointment with a Craniofacial team 1 week after her 6 month well check visit and were booked for a surgery a few days after that. Our surgery date is Dec 13th. By the time my daughter has her surgery she will be 7 months and 3 days old and it will only be 5 weeks since the appoinment that started all of this. If anything, I am thankful that it will all be over with soon and we didn't have to wait months like some of the other families. Anyways, you can read the whole story in the "our stories" forum or click on the link in my signature. Welcome and good luck with your daughter Devon. She is really cute!!

[Janet]

Devon is such a cutie!!! I hope you actually get to see a neurosurgeon soon. Are you having the surgery done in Windsor?

[sarahob]

Thanks for the update. I hope you get your appointment soon. Keep calling them. We were first referred to MacMaster in Hamilton but waited so long that we had our family doctor refer us to Sick Kids and we were seen very quickly. Please keep us updated.

[krisrabideau]

We are having our surgery in London. When we go to London this Friday, I will be asking if Devon's surgery will be done before the plastic surgeon's projected date, if not then we will be looking into Toronto. Oh and of course I agree Devon is a beautiful little girl. I also have two others daughters Brandy 19, Jessica 13.

[Janet]

I can't say enough about Sick Kids hospital. They are absolutly wonderful. There are a few Mom's on her who have dealt with them.