New from Windsor

[krisrabideau]

Hello everyone, Our daughter Devon was diagnosed with Sagital Craniosynostosis in Sept. 07. We are currently waiting for a surgery date. She had her first CT Scan Oct 26 and we met with the plastic surgeon Nov 2. She now has to see the pediatric neurosurgeon on the 20. She is already 5 months old and they are looking into having her surgery no later than the first week of Jan. Our anxiety levels are so high. On one hand we don't want any of this to happen and then on the other we want it to happen now, so Devon does not expierence any delays because of this. We are afraid of all of the unknowns and welcome any stories or advice you would like to share with us.

[jessbee78]

Hi there, welcome to the forum. Our son Logan had surgery for saggital 4 months ago and he is doing wonderfully well. It is a hard time waiting for the surgery date - I know that is all you think about until they actually can tell you the date. It is a scary and anxious time, but once little Devon has had the surgery it is a whole new world! Don't get too worried about her experiencing any delays - there are alot of adults in the world that haven't had surgery for saggital and other cranios for that matter that don't have any problems at all - so try not to worry too much about that.
There are so many wonderful people on here, and you can find everything you need to know before and after the surgery. No question is ever too little to answer! Good Luck and welcome to the forum xx.

[Janet]

Welcome to Cranio Kids....are you from Windsor, Ontario??
This is a stressful time, but if you read the stories you'll know that they bounce back so fast.

[sarahob]

I'm so glad you decided to join CranioKids! Welcome. The support of this group is amazing. The waiting is difficult but January will be here before you know it.

[jenniferann75]

Hello and welcome to Cranio Kids! My son Andrew had surgery for sagittal cranio in July. He was 4 1/2 months old. When he was born, my husband and I questioned his head shape. We were told time and time again that it was because he was breech. I finally did my own research online and presented the info I found to his pediatrician. She ordered an immediate skull x-ray and found that the sagittal suture was indeed fused. We were then referred to a pediatric neurosurgeon who ordered a CT scan and a week later he was in surgery. Anyway, that's the short story. If you have any questions about anything, don't hesitate to ask. This is a wonderful and supportive board with a wealth of information.

[snickers9246]

Welcome for sure!! There are lots of us Moms on here with beautiful little "peanut heads" who have had some sort of cranio, or more than one! Hope we can answer some of your questions and help you through everything. I know this site really helped us! We're now 2 years post-Op and doing great!!

[Koops]

Hi and welcome. Our son Bailey had surgery for sagittal in June and is now 8 months, very cheeky and experiencing no delays. I don't think these babies have anymore chance of being delayed than any other baby but that is just my opinion. All the sagittal and cranio babies I know are bright, happy, contented and not experiencing any delays.
So try not to worry too much and just remember we all know what you are going through so any time you need help come online. I just wish every day that I had found this site pre-op. Enjoy Christmas and keep us all posted.

[charliesmummy]

Welcome to Cranio Kids this is a fantastic site. My son had surgery for Metopic 9 weeks ago & he is doing fantastic. Please feel free to ask as many questions as you like as there's always someone to help xx

[melsch]

Welcome! This site is so fantastic! My son was diagnosed with Metopic cranio at birth and we waited 3 long months for him to be big enough to sustain the surgery. Logan had his surgery last week and is doing fanstastic. I was amazed at how quickly they recover (I'd probably still be on morphine!). The waiting is the hardest part and I can honestly say that I know how you feel. These ladies were a great source of support to me and hopefully we can be to you too! Welcome again!

[mrs j]

Welcome to this brilliant site, my son was diagnosed with metopic, and hopefully he will have surgery soon after the new year,waiting is just awful, but these mums have been brilliant with me and given me some quite excellent advice and info,good luck and keep us posted on any progress. xxx

Melissa im so glad Logan is still doing well. xx