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Thread: Good Luck Vance and Denise

  1. 04-17-2011 11:41 AM #1
    Janet
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    Wink Good Luck Vance and Denise

    Tomorrow (the 18th) Vance is having his second CVR.

    praying for you Denise and the whole family. Vance will do great, please update us when you can.
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

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  2. 04-17-2011 12:01 PM #2
    Jenny
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    Good luck Vance!! We're all praying for you all!
    Jenny
    Mikayla ~ February 18, 03 Bi-Coronal Craniosynostosis-read her story http://craniokids.org/support/showth...hlight=mikayla
    Anabelle ~ 10/05
    Jaden Michael ~ 9/08


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  3. 04-17-2011 01:06 PM #3
    vancesmommy
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    Thank you girls! I wish I was as calm about this all as I was the first time. Feel like I am about to fall apart today. Hopefully tomorrow morning I will wake up with the strength to get through the day. Who am I kidding, like I will sleep tonight! I will be updating on facebook tomorrow, so if I don't make it on here and anyone wants to please pass it along!
    Denise
    mommy to     David (2/25/03), Vance (12/22/04)-cleft lip,repaired 3/22/05, metopic cranio, CVR & FOA 8/23/05, & cleft palate, repaired 11/16/05, 2nd CVR scheduled for 8/29/11 and Savannah (7/16/07)
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  4. 04-17-2011 01:35 PM #4
    AJ's Mommy
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    Prayers!!!!
    ~~Shelby~~

    AJ~Sagittal Craniosynostosis
    ~Surgery 10-6-2009 At Seattle Children's Hospital
    ~Dr. Ojemann and Dr. Gruss~

    Cranio Care Bears
    www.craniocarebears.org
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  5. 04-17-2011 02:15 PM #5
    Sam Y
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    Best of luck to you and Vance, will be looking out for updates
    Sam...
    Proud mummy to A born 12/2009.
    Diagnosed at 4 weeks with Metopic Suture Synotosis with Trigonocephaly.
    My very brave and gorgeous boy!
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  6. 04-18-2011 07:31 AM #6
    Janet
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    Here is what I saw on FB:

    We have to be at the hospital by 5:45 for surgery at 7:30.

    Praying for you guys today. Thinking of Vance and your whole family.
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

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  7. 04-18-2011 08:08 AM #7
    jjmc123
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    Good luck!!!!!
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione
    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60     *** 8/6/12 - 20/50

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  8. 04-18-2011 08:32 AM #8
    Janet
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    From FB:

    Surgery was canceled. He has a sinus infection. So 3 weeks of antibiotic then in 4 weeks we follow up with an ENT. If all is well then we will reschedule. So looks like another couple of months of waiting. :( Glad they want to make sure it is safe though.

    What a emotional day for you guys
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

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  9. 04-18-2011 10:30 AM #9
    Sam Y
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    Oh no how disappointing for them. Better to play things safe though x
    Sam...
    Proud mummy to A born 12/2009.
    Diagnosed at 4 weeks with Metopic Suture Synotosis with Trigonocephaly.
    My very brave and gorgeous boy!
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  10. 04-19-2011 08:53 AM #10
    Zara's mum
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    terribly disappointing - but it's the safest thing for little Vance x
    Chloe,



    Mum to 3 beautiful children-

    Aaron 12/2/02
    Joey 5/3/06
    Zara 16/12/07 our little princess-right unicoronal. Surgery 29th April 2009. Great Ormond Street Hospital

    Zara's craniofacial journey http://www.youtube.com/watch?v=DtNbSmC8LNU
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