I am, admittedly, a newbie to all of this and quite ignorant when it comes to the various syndromes of which cranio can be a part.
Henry's craniofacial surgeon said that Henry appears non-syndromic. I dislike the word "appears;" I would rather know yes or no. He is our first child, and knowing whether there is a genetic component may influence our decision to have more children...or at the very least influence when we decide to try for #2.
Is genetic testing something I can request? Is it something my husband and I should undergo? The surgeon said our odds of having another child with cranio are 1 in 4000- the same as anyone else, but I have read other folks have been given different odds.
What are your experiences?